08/11/04 - HUNTER’S HOPE FOUNDATION GRANTEE WORK PUBLISHED IN PROMINENT MEDICAL JOURNAL

Nature Publishers in Gene Therapy recently published Krabbe research conducted by Dr. Miguel Gama-Sosa and funded by Hall of Famer, Jim Kelly’s, organization

Orchard Park, NY - Since the Hunter’s Hope Foundation’s inception in 1997, the organization has awarded over $3.8 million in research grants to identify new treatments, therapies, and ultimately a cure for Krabbe Disease and other leukodystrophies. One of these grants was awarded to Miquel Gama-Sosa, Associate Professor of Psychiatry at the Mt. Sinai School of Medicine Bronx V.A. Medical Center. And now, Gama-Sosa’s research project, “Transgenic Rescue of Krabbe disease in the Twitcher Mouse” has been published in the May 2004 issue of Gene Therapy, a respected medical journal. To read Gama-Sosa’s article in full please go to: http://www.huntershope.org/research/grants_awarded/gama_sosa.asp

This is a huge step in the right direction for this so-called rare disease, which in actuality, is much more common than once thought. Over 2 million people in the United States carry the defective gene that causes Krabbe disease - that’s 1 out of every 125 people!

At the 2003 Hunter’s Hope Scientific and Medical Symposium, Dr. Gama-Sosa also presented his latest research findings, providing him and other researchers additional time for collaboration. We are grateful to him and all of our supporters that have made it possible for Hunter’s Hope to provide funding for this valuable research. Opportunities like these continue to help save the lives of future generations.

Hunter’s Hope was established in 1997 by Pro Football Hall of Fame member and former Buffalo Bill, Jim Kelly, and his wife Jill, after their infant son Hunter, was diagnosed with Krabbe Leukodystrophy, an inherited, fatal, nervous system disease. The Foundation is the Kelly’s life long commitment to increase public awareness of leukodystrophies as well as to increase the likelihood of early detection and treatment. Their ultimate goal is to raise money to fund research efforts to identify new treatments, therapies, and a cure for Krabbe and other leukodystrophies. To date, the Foundation has awarded over $3.8 million to leukodystrophy and related neurological disease research. For more information: 1-877-984-HOPE or www.huntershope.org.

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