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RESEARCH PROJECTS
HJKRI Worldwide Registry (WWR)
WWR Letter
WWR Description
WWR Participation Form
NFRD at UNC Chapel Hill Research Studies
UNC Krabbe MRI Research Study Brochure
UNC Krabbe Natural History Research Study Brochure
UNC MLD Study Brochure
UNC Research Related
Published Articles
Correlation of Neurodevelopment Features & MRI in Infantile Krabbe Disease
Diffusion Tensor Imaging Detects Abnormalities in Infantile Krabbe
CENTER FOR KRABBE DISEASE
Mission
- Develop initiatives to maximize the success of the Newborn Screening program for Krabbe Disease
- Increase understanding of the various types of Krabbe Disease and determine which biochemical, genetic, and/or neurodiagnostic tests predict phenotype
- Educate physicians about Krabbe Disease and the Newborn Screening program
- Develop clinical evaluation and treatment protocols for Krabbe Disease
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