Some kids win, and some lose.
But it doesn’t have to be that way.
You can help save children's lives!
Take action now!
Federal Legislation
Newborn Screening Saves Lives Act, Bill S.1858 / H.R. 3825M, was signed into law
(Public Law 110-204) by President Bush on April 24, 2008. Although it was signed
into law, it has not yet been funded—$44.5 Million. It is estimated that the cost of
not implementing Universal Comprehensive Newborn Screening exceeds a Billion
dollars annually.
You can not put a price on the life of a child.
Please contact your U.S. Senators and Congressman and urge them to support funding
for this Bill. The longer funding for this Bill is delayed the more children will
needlessly die or become permanently disabled.
Please contact your legislators and help them understand the importance of
Universal Newborn Screening. You can find their contact information through
this link: Legislators’ Contact Information.
You may use one or more of the following to help you:
- Phone (click here for a script with talking points)
- E-mail (click here for a sample email)
- Send a letter (click here for a letter template)
