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Research Directors

Dr. Thomas Langan
HJK Research Institute
Clinical Research

Dr. Lawrence Wrabetz
HJK Research Institute
Basic Science Research


Kaitlin Brunner
Director, Special Events and Administrative Systems

Laura Egan
Executive Assistant

Anna Grantham
Director, Education & Awareness, and Newborn Screening

Kathleen Scott
Director, Family Care

Jessica Spino
Development Coordinator


Hunter's Hope Team

Board of Directors & Officers
Jim Kelly
Co-Founder, Hunter's Hope
Phil May
Board Member
VP & General Manager of Warner/
Chappell Music Publishing in Nashville

Jill Kelly

Co-Founder, Hunter's Hope

Michelle Tharnish
Treasurer/Board Member
Partner with Sixt, Wengewicz & Tharnish, CPAs

Erin Kelly

Board Member
Hunter's Sister

Lauren Gidley
Secretary/Board Member
President, Prosperity Wealth Management

Greg Connors

Board Member
Esq. of Connors & Ferris, LLP

Steven Schmitt
Board Member
Marketing Manager, Sherex Fastening Solutions

David Janca

Board Member
Founder, Value Centric

Connie Scherrer
Board Member
Corporate Member Service Operations Analyst,
Summit Federal Credit Union 

Brad Rye
Board Member
Senior Partner, Eric Mower + Associates
Russ Russell
Board Member
Chief Advancement Officer, Detroit PAL 

Anne McCune

Board Member
Vogt Family Foundation Board Member

Kevin Gavagan
Board Member
Owner, QCI Asset Management 

Jacque Waggoner

Chief Executive Officer
Hunter's Hope  

 HH Logo and Type_Vertical_Grey Background

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 


About Us

Kelly Family Story
Hunter's Hope Team

HJKRI Clinical Center
HJKRI Basic Science Center
Extramaural Research
Medical & Science Symposium
Research Publications
Historical Research


Krabbe and Leukodystrophies

About Krabbe
About Leukodystrophies

Newborn Screening
What is NBS?
Krabbe NBS
State and Federal Info
Take Action
Families Taking Action
Supplemental NBS
Why NBS?


Family Care

Wall of Fame
Affected Family Registration
Hope for Life
Family & Medical Symposium
Hunter's Homes
Equipment & Supply Exchange
Hunter's Wish Gift
Kaden's Kisses


Get Involved

Jim Kelly's Every Score
Jill Kelly's Every Sister
Every Step Walk
Special Events & Campaigns
Hunter's Day of Hope & Prayer for Children
Strategic Partners




  6368 West Quaker Street, PO Box 643, Orchard Park, NY 14127 |  (716) 667-1200