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Mission

Hunter’s Hope Foundation was established to address the acute need for information and research with respect to Krabbe Disease and related Leukodystrophies. In addition, we strive to support and encourage those afflicted and their families as they struggle to endure, adjust and cope with the demands of these fatal illnesses.

Accordingly, our mission is four-fold:

  • To broaden public awareness of Krabbe Disease and other Leukodystrophies thus increasing the probability of early detection and treatment.
  • To gather and provide current, functional information and service linkages to families of children with Leukodystrophies.
  • To fund research efforts that will identify new treatments, therapies and ultimately, a cure for Krabbe Disease and other Leukodystrophies.
  • To establish an alliance of hope that will nourish, affirm and confront the urgent need for medical, financial and emotional support of family members and those afflicted with Leukodystrophies.

Among the essential goals, founders Jim and Jill Kelly, seek to inspire an appreciation of all children and express a thankful heart towards God for these precious gifts of life. These bedrock values are categorically and vigilantly expressed throughout all of the Foundation's programs and activities.


Core Values

We believe...

...that we must remain true to and passionate about our core ideology
...that we must live and preserve our family-oriented and wholesome image
...in respecting and valuing individual contributions
...in truthfulness and honesty in all matters
...in respecting the right of privacy of all individuals


     
 
 HH Logo and Type_Vertical_Grey Background

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 

 


About Us

Mission
Hunter
Kelly Family Story
Hunter's Hope Team

Research
HJKRI Clinical Center
HJKRI Basic Science Center
Extramaural Research
Medical & Science Symposium
Research Publications
Historical Research

 


Krabbe and Leukodystrophies

About Krabbe
About Leukodystrophies

Newborn Screening
What is NBS?
Krabbe NBS
State and Federal Info
Take Action
Families Taking Action
Supplemental NBS
Why NBS?

 


Family Care

Wall of Fame
Affected Family Registration
Hope for Life
Family & Medical Symposium
Hunter's Homes
Equipment & Supply Exchange
Hunter's Wish Gift
Kaden's Kisses

 


Get Involved

Jim Kelly's Every Score
Jill Kelly's Every Sister
Every Step Walk
Special Events & Campaigns
Hunter's Day of Hope & Prayer for Children
Strategic Partners
Volunteer

News

Calendar

Donate

   
  6368 West Quaker Street, PO Box 643, Orchard Park, NY 14127 |  (716) 667-1200