Although Krabbe and other Leukodystrophies are devastating diseases,
affected children are capable of living well beyond the disease reported
life expectancy. Their lives can be filled with joy and fun
activities! Through aggressive intervention, these children are defying
the odds and the expectations placed upon them. Each child affected by
Krabbe or another Leukodystrophies is a unique individual, full of
potential and life.
Hope for Life is
a special program intended to encourage parents of children affected by
Krabbe and other Leukodystrophies to pursue the best care and
opportunities available for as full a life as possible for your child.
Whether your child is newly diagnosed, or was diagnosed years ago, it is our hope that you will find Hope for Life helpful and enlightening. Above all, it is our prayer that you will believe that there is hope for your child… Hope for Life!
It is impossible to express the
amazing life Hunter had, but we are hoping that these stories, photos
and videos will give you a glimpse into Hunter's life and the Hope we
have for your child's life.