Welcome to Hunter’s Hope Family Programs!
Hope Foundation is fully committed to providing encouragement,
education and support to our families. Our hope and prayer is that you
will feel connected to our family and will join us in this fight against
these devastating diseases.
Among the essential goals of the
Foundation, founders Jim and Jill Kelly, seek to inspire an appreciation
of all children and express a thankful heart towards God for the
precious gift of life.
In striving to achieve our mission, our Family
Programs encompasses key program areas designed to meet the needs of our
||Hope For Life
children affected by Krabbe and other leukodystrophies are defying the
expectations placed on them. Read stories of hope and find helpful
resources as you care for and enjoy time with your child.
Visit the Hope for Life page to learn more...
"Thank you so so much for the beautiful card received right on
time!! As you know it is so lovely for our angels to be remembered by
others. Thanks to all at Hunter's Hope - you are all amazing and we are
privileged to be part of this wonderful family."
~ Nadia, Tom, Ben
and Leo - Angel Mac Casey's Family - New Zealand
What Our Families Have to Say...
You to all of you for your kind gift. The van has already been a
blessing to our family. Words can not express how it feels to have the
van and to know that we have not had to make any financial changes.
Thank you, thank you!!!”
~ Dianna Greene, mom to Dalton (Krabbe Disease, Transplant)
day we received our welcome package Peyton had only
been home post transplant for MLD for 2 days.
The smile on his face said it all. The bear goes everywhere with us.
Peyton simply named him...Hunter! The book Without a Word was amazing - every
emotion is in this book. I can't believe on top of everything that
does, they also make it a point of making sure you feel welcome and
part of something great."
~ Jessica White, mom to Peyton (MLD, Transplant)
Additional Information for Families
Related Donor Cord Blood - This
Program offers families the opportunity to have the umbilical cord
blood of a new baby collected and stored at no cost to them. The cord
blood then may be used to treat an affected biological sibling or parent
who has a diagnosed disease, which can include Krabbe and other
leukodystrophies, leukemia, lymphoma, a sickle-cell disorder, an immune
deficiency or a metabolic disease. The program is administered by the
National Marrow Donor Program (NMDP), and overseen by the U.S. Health
Resources and Services Administration (HRSA). More information can be
found on the National Marrow Related Donor Cord Blood Program website.