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2012 Medical & Scientific Symposium
Top: Presentation & Roundtable Discussion
Upper Middle: Hunter's Hope Co-Founder Jim Kelly greets researchers during a reception
Lower Middle: Visiting prior to dinner
Bottom: Researchers tour HJKRI with families affected by Krabbe & Leukodystrophies

HJKRI - Medical & Science Symposium

Annual Workshop on Krabbe Disease
Attendance to the scientific and medical symposium is by invitation only. For more information please email

Please Save the Date!

The Annual Medical & Science Symposium will take place Sun. July 27 - Wed. July 30, 2014 at Holiday Valley Resort in Ellicottville, NY.  *Please note the change in dates*

This annual multidisciplinary workshop brings together over 50 child neurologists, geneticists, basic scientists, neuroradiologists, neurodevelopmental pediatricians, transplanters, oncologists, neuropsychologists and experts in newborn screening to discuss advances in clinical and basic science research in Krabbe Disease and other Leukodystrophies.

Past programs and schedules (downloadable):
2014 Workshop Program

2013 Workshop Program

2012 Workshop Program

2011 Workshop Program

2010 Workshop Program

The Family Symposium is scheduled for the week of July 23th - 27th, 2014 at Holiday Valley Resort in Ellicottville, NY.

For information on the family component of the symposium, which welcomes over 35 Krabbe & Leukodystrophy families each year, please visit the Family & Medical Symposium page under our Family Programs.