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Eunice Kennedy Shriver National Institute of Child Health & Human Development (NICHD) Renames NBS Program after Hunter Kelly

NICHD Hunter Kelly Newborn Screening Research Program Event


NICHD Event Jill and Stephen
Jim & Jill Kelly, Yvonne Maddox Ph.D.
(Deputy Director, NICHD), Stephen
and Caroline Monaco (Both have
Isovaleric Acidemia)
- Washington D.C. 2009

Monaco Family Slides

PARC Foundation Presents
Inaugaral Jack Kemp Award

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Jim, Jill & Erin Kelly with Jack Kemp

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Jill Kelly & Jacque Waggoner Accept the
Award at Darien Lake - Java, NY, 2009

Texas Senate Passes Greyson's Law Increasing Newborn Screening

Minnesota names the Cord Blood Information Law 'Jeremy's Law'
Jeremy's Law
Jeremy Thoms and his Mom and Dad being congratulated by WI Governor Doyle after the Cord Blood Law was renamed “Jeremy’s Law” in honor of Jeremy Thoms - Minnesota, 2005  (JLaw-Doyle/Thoms/Weichert)

News & Media - Articles & Press Releases  
10/3/16 Jim & Jill Kelly Launch New Jewelry Line  
Hunter's Hope to Host 19th Annual Family & Medical Symposium  
11/01/15 John's World: Teen with Rare Disease Doesn't Give Up  
9/21/15 New Technique Lets Scientists See, Study Where Cells Touch  
04/01/15 Ohio Co. Girl's Fight Against Rare Disease Leads to New Law  
04/01/15 Ray Duckler: Why Don't We Test for Krabbe? Inquiring Minds Want to Know  
03/23/15 Push for Collin's Law Continues  
03/13/15 Oregon Boy's Fatal Diagnosis Leads to Life-Saving Treatment for Brother  
03/12/15 You Never Expect to Hear Your Little Baby is Dying' Says Mom of Child With Krabbe Disease  
03/12/15 Family's Bittersweet Journey Spares One Son From Rare Disease, But Not the Other  
03/11/15 Family Hit by Rare Disease Pushes for More Newborn Testing  
03/11/15 Final Legislative Approved for Newborn Testing of Krabbe Disease (Kentucky)  
03/11/15 Maryland House Passes O'Donnell's Bill  
03/10/15 Kentucky Legislature Agrees to Screen Newborns for Krabbe  
03/02/15 Krabbe Disease Bill Clears House Committee  
02/26/15 Super Gav Inspires Newborn Testing Bill  
02/16/15 Hunter's Hope Foundation Marks Another Year of Progress  
02/10/15 Super Gav to the Capitol: New Bill Bearing Winona Boy's Name Would Raise Awareness of Rare Disease  
02/09/15 Powell Baby Dies of Rare Disorder  
02/02/15  Hunter's Hope -- Taking Action to Expand Newborn Screening  
12/26/14 Family Pushes for Newborn Screenings for Deadly Diseases  
10/15/14 Governor Corbett Signs Bill Expanding Pennsylvania's Newborn Screening Requirements  
10/08/14 Pennsylvania Legislature Passes Hannah's Law Mandating Newborn Screening for Krabbe and Similar Disorders  
09/07/14 Hunter's Hope Kicks Off 4th Season of Jim Kelly's Every Score  
07/24/14 Hunter’s Hope to Host 17th Annual Family & Medical Symposium  
06/26/14 Daughter Of Buffalo Bills Legend, Jim Kelly, to Share Family’s Story of Hope
05/19/14 Pediatrics: Reflections on 50 Years of Newborn Screening  
05/01/14 Ralph C. Wilson Foundation Awards $100,000 to Hunter's Hope for Annual Family & Medical Symposium  
02/24/14 New York Leads the Way in Lifesaving Newborn Screening  
01/27/14 Hunter James Kelly Research Institute Shows How Differene Variations of Krabbe Disease Correlate with MRI Results  
10/22/13 Pennsylvania's 'Hannah's Law' Effort Getting High Profile Attention  
09/17/13 NFL Hall of Fame Member Urges Congress to Team Up for Our Nation's Children  
08/30/13 Lockport Family Will Make Every Step Count During 6th Annual Walk to Benefit Hunter's Hope  
08/28/13 Baby with Fatal Disease Inspires PA Bill to Expand Newborn Testing  
07/23/13 Myelination Researcher Honored as Distinguished Postdoc Mentor  
07/21/13 Hunter’s Hope to Host 16th Annual Family & Medical Symposium  
07/12/13 Jim Kelly and the Buffalo Bisons Team Up for Hunter's Hope Day at Coca-Cola Field  
06/05/13 Bidding Open on Hunter's Hope and WGR Sports Radio 550's Auction for Awareness  
05/31/13 Researchers ID Neuropathy Cause, Restore Myelination  
04/26/13 Hitting ‘reset’ in protein synthesis restores myelination, suggests new treatment for misfolded protein diseases, such as CMT, Alzheimer’s  
04/18/13 Newborn Screening: Parents are the Best Advocates  
04/17/13 How One Terminally Ill Boy Saved His Brother's Life and Could Save Countless Others  
04/02/13 Hunter's Hope Foundation Announces New Executive Director  
04/01/13 New York Legislature Approves Bill for Newborn Screening -- Aidan's Law  
03/07/13 Rosicki, Rosicki, &Associates, P.C. Unites Judicial, Legal and Banking Communities for Evening of Hope  
03/05/13 Tennessee Family Fights so Another Child Does Not Have to Suffer the Way Theirs Did  
02/16/13 Hunter's Memory Lives on in Day of Hope & Prayer  
02/13/13 Gov. Cuomo Commemorates 2/14/13 as Hunter's Hope Day of Hope and Prayer for Children in New York  
02/06/13 Jim & Jill Kelly Invite WNY Families to Celebrate Hunter's Day of Hope & Prayer for Children  
01/22/13 Fans Get Behind Jim Kelly's Every Score to Make Every Point Count  
01/16/13 Walmart Gives Hunter's Hope Much to be Thankful For
11/19/12 Capital Profile: Michele Caggana, Director of the Newborn Screening Program -- Albany, NY  
11/12/12 Hunter's Hope Receives National Football League Charities Grant  
10/25/12 Buffalo Bills Youth Foundation Helps Hunter's Hope Make a Big Impact on Deserving Families  
10/23/12 Hunter's Hope and NYMAC Join Forces For Krabbe Newborn Screening  
10/04/12 Team Judson's Legacy Wins $40,000 for Hunter's Hope and Moves on to Finals  
09/28/12 Hunter's Hope Announces Launch of Jim Kelly's Every Score iPhone App  
09/28/12 Wadsworth Newborn Screening Laboratory Finds a Shorter Path to a Healthier Future  
09/12/12 Missouri Becomes 2nd State to Screen Newborns for Krabbe Disease  
09/04/12 Team Judson's Legacy Wins $20,000 for Hunter's Hope on GSN's American Bible Challenge  
08/22/12 Buffalo Bisons to Host Hunter's Hope Night, August 24 at Coca-Cola Field  
08/10/12 Hunter's Hope and WGR Sports Radio 550 Team-Up for Expanded & Universal Newborn Screening  
07/27/12 Hunter's Hope to Host 15th Annual Family & Medical Symposium  
06/19/12 Jim Kelly, Pat LaFontaine, Charlie Kimball Honored for Public Service with 40th Annual Jefferson Awards  
05/09/12 Hunter's Hope Foundation Announces Partnership with Buffalo Hunters Ultimate Disc Team  
04/22/12 Foundation near and dear to Kelly's heart  
04/18/12 Sen. Tony Strickland's Newborn Health Bill (Jacquelyn's Bill) Heard in Committee -  California Newborn Screening  
04/17/12 Hunter's Hope and Bulldog of WGR550 Sports Radio Team Up for Second Annual Bulldog's Endurance for Hope Challenge  
03/21/12 Families Fight to Provide a Better Start at Life for Children Born in Tennessee  
03/08/12 Research Center Honors Hunter Kelly - Institute to Focus Efforts on Curing Leukodystrophies  
02/28/12 Rosicki, Rosicki & Associates, P.C. Unites Judicial, Legal and Banking Communities for Evening of Hope  
02/02/12 Jim & Jill Kelly Invite WNY Families to Celebrate the Gift of Children at Hunter's Day of Hope for Children  
01/13/12 New Jersey Becomes 5th State to Add Krabbe Disease to Newborn Screening Panel with Passage of Emma's Law  
11/29/11 Hunter's Hope Awarded $75,000 Through Walmart State of Giving Program  
11/03/11 Arrival of Wrabetz and Feltri Moves Work of Kelly Institute Forward  
10/28/11 Supplemental Screening for Krabbe Disease Now Available to Every Child. Every Time. Everywhere.TM  
09/21/11 12-Year-Old Texas Boy Heads to Washington, D.C. with Hunter's Hope to Raise Awareness for Newborn Screening  
09/09/11 Former Buffalo Bills Quarterback Jim Kelly, Connors & Ferris, LLP and the Buffalo Bills Partner for the Every Score Challenge  
08/04/11 Hunter's Hope and WGR550 Sports Radio Team-Up for Expanded & Universal Newborn Screening  
07/19/11 Hunter's Hope Brings Families & Researchers from Around the World to Western New York for the 14th Annual Hunter's Hope Family & Medical Symposium  
05/31/11 Advancements in Newborn Screening Cited Amongst Great Public Health Achievements by CDC  
05/17/11 Jim & Jill Kelly to Host 9th Annual Hunter's Hope Candlelight Ball in Rochester  
05/11/11 Wife of NFL Hall of Fame Quarterback Jill Kelly to Speak at Community Forum on Disabilities  
03/25/11 Rosicki, Rosicki & Associates, P.C. Host Seventh Annual Charity Event to Benefit the Hunter's Hope Foundation  
02/17/11 Sixth Annual Buffalo Ice Bowl Tournament to Raise Awareness & Funds for the Hunter's Hope Foundation
01/27/11 Jim & Jill Invite Western New York Families to the 13th Annual Hunter's Day of Hope for Children
01/07/11 Former Buffalo Bills Quarterback Jim Kelly and Wendy's Team Up for Third Annual Frosty's & Fries for Hope Campaign  
08/13/10 Couple to Lead HJKRI  
08/12/10 Noted Researchers Recruited to UB's Hunter James Kelly Research Institute  
08/03/10 Hunter's Hope and Entercom Buffalo Join Teams for Universal Newborn Screening  
05/25/10 Buffalo Bisons to Host Hunter's Hope Night, July 9 at Coca-Cola Field
03/11/10 Rosicki, Rosicki, & Associates, P.C. Host Charity Event to Benefit Hunter's Hope Foundation  
03/02/10 NFL Pro Football Hall of Fame Member Jim Kelly and Wife Jill Announce 8th Annual Hunter's Hope Candlelight Ball in Rochester  
02/17/10 Pro Hall of Fame Quarterback Jim Kelly and New Mexico Family Team for Success with the Passing of Newborn Screening Legislation in New Mexico  
02/04/10 Hunter's Hope to Celebrate God's Precious Gift of Children at 13th Annual Hunter's Day of Hope for Children  
10/21/09 Hunter's Hope Foundation Helping Families at Duke  
10/19/09 NIH/NICHD Renames Newborn Screening Research Program after Hunter Kelly  
  NICHD Hunter Kelly Research Event Program  
  NICHD Renaming Letter  
07/20/09 NCSL Invites Kelly to Speak  
07/20/09 Betsy Neahring: Newborn Screening’s Important  
06/27/09 Badge of Honor Presents Hunter’s Hope with $10,600  
06/01/09 Hunter's Hope Receives PARC Foundation Inaugural Jack Kemp Community Award at Darien Lake  
05/14/09 Texas Senate Passes Greyson Law  
05/11/09 American College of Medical Genetics Affirms Importance of Newborn Screening Dried Blood Spot  
05/09/09 Brady Cunningham Law - Missouri to add Krabbe and 4 other Lysosomal Storage Diseases to NBS panel  
04/06/09 Hunter’s Hope Foundation. Led By Pro Hall of Fame Quarterback, Jim Kelly, Executes Flawless Game Plan in Arizona  
03/27/09 Hunter's Hope Foundation Urges Arizona Legislature Not to Cut $1.5 Million for Newborn Screenings  
02/17/09 Jim & Jill Kelly to kick off Partnership with Aurora at Toy Fair in NYC
01/08/09 Delta Airlines Helps Hall of Fame Quarterback in Pursuit to Save Children’s Lives  
11/03/08 Sports Illustrated’s Peter King Recognizes Jim Kelly & NBS  
09/14/08 Testing Holds Hope for Newborns Hunter’s Hope Champions Universal Screenings for 54 Treatable Diseases - Jimmy Schmitt’s Stor  
06/26/07 Senator Clinton Introduces Bill to Help Detect and Prevent Disorders in Infants (SHINE Act)
11/19/07 United States Senate HELP Committee Passes Bill S.1858 Newborn Screening Saves Lives Act  
12/20/07 Learning a Life Altering Lesson  
12/2005 Jeremy's Law - Minnesota's Cord Blood Information Law  

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"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 


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