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Paper Hearts for Hope

Organize a Campaign
Campaigns are an easy way to raise awareness and funds for Hunter's Hope. They are a great way to get offices, schools and organizations involved.

Dress Down Days

Pulling for Hope

Hearts for Hope
Hearts Printout

Click the campaign for information.

Interested in organizing a campaign? Contact Hunter's Hope so we can help! Special Events and Campaigns

Throughout the country organizations and families coordinate and participate in fundraising events that raise awareness and generate support for our life-saving mission. Help make a difference by coordinating a special event or organizing a campaign to benefit Hunter's Hope.

If your life has been impacted by someone affected by Krabbe, other leukodsytrophies or newborn screening we invite you to consider making an impact in your local community in their honor or memory.

View our calendar to see upcoming events.

HH Night with Bisons_FB TossHost an Event

Interested in raising awareness and funds for Hunter's Hope? Host your own event!

Get started by completing the Special Event Coordinator Questionnaire, a Hunter's Hope staff member will follow up to help you get started!

There are a variety of events you can plan to raise funds and spread awareness. Be creative and have fun! Looking for some event ideas? Contact Hunter's Hope for suggestions.


Upcoming Events 

2015 Outside Event_Johnny Ink Art Gallery

Johnny Ink Art Gallery Blast Benefiting Hunter's Hope

Saturday, June 27, 2015
Exchange on Allen -- Buffalo, NY

Bid on custom art pieces by Johnny Ink and enter raffles to win prizes while raising funds for Hunter's Hope. Get more information here


HH Logo Golf Ball on Tee

19th Annual JVL Open

Monday, July 27, 2015
Colonial Springs Golf Course -- East Farmingdale, NY

This charity golf outing includes auctions, 50/50 raffle and more.  Join JVL for a fun filled day of golf and laughs in support of Hunter's Hope.

For more information, please contact Rich Mullin at, or (516) 606-3464.




2105 Outside Event_Thomasino Euchre Tourney Flyer

Thomasino Euchre Tourney III

Saturday, September 12, 2015
Concordia Lutheran Church -- Kendall, NY

This family benefit for the Hunter's Hope Foundation has a $20 buy in, and includes a chili bar, raffles, fun and more, all in support of Hunter's Hope. 

For more information, please contact Heather Dyer at


 HH Logo and Type_Vertical_Grey Background

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 


About Us

Kelly Family Story
Hunter's Hope Team

HJKRI Clinical Center
HJKRI Basic Science Center
Extramaural Research
Medical & Science Symposium
Research Publications
Historical Research


Krabbe and Leukodystrophies

About Krabbe
About Leukodystrophies

Newborn Screening
What is NBS?
Krabbe NBS
State and Federal Info
Take Action
Families Taking Action
Supplemental NBS
Why NBS?


Family Care

Wall of Fame
Affected Family Registration
Hope for Life
Family & Medical Symposium
Hunter's Homes
Equipment & Supply Exchange
Hunter's Wish Gift
Kaden's Kisses


Get Involved

Jim Kelly's Every Score
Jill Kelly's Every Sister
Every Step Walk
Special Events & Campaigns
Hunter's Day of Hope & Prayer for Children
Strategic Partners




  6368 West Quaker Street, PO Box 643, Orchard Park, NY 14127 |  (716) 667-1200