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No state includes all 56 recommended potentially fatal, but treatable, diseases in its Newborn Screening Program. Currently, New York and Missouri are the only states that screen newborns for Krabbe Disease.

With your help, we can save babies’
lives by ensuring that
Every Child. Every Time. Everywhere.™ is screened for every possible disease, including Krabbe, at birth.

Take Action to tell your state lawmakers why Expanded & Universal Newborn Screening should be a reality in all states.  Ask your friends, family - everyone you know to do the same.
Be the voice for those who have none.

Take Action for Newborn Screening

Take Action!
Help us advocate for Expanded Newborn Screening in Every State.

Support Expanded Newborn Screening in Your State
Ask your state lawmakers to increase the number of diseases that your state screens for at birth.
New alerts will be added as opportunities for expanded newborn screening arise. If there's activity going on in your state, we'd like to help - please let us know by emailing

How Early Detection Saved Zoey's Life

Zoey, who received a cord blood transplant when she was born in 2005, is a beautiful example of the difference that early detection and treatment for Krabbe Disease can make in a child's life.

By taking action in your state, you can help ensure that every child has the same chance at life as Zoey.

Learn more about Zoey and her story...

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"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 


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