News     Calendar    Donate Facebook Badge_Light GreyTwitter Badge_Light GreyInstagram Badge_Light GreyYoutube Badge_Light Grey  
 
 
  Green Line_Homepage
 

NBS_Take_Action_Graphic_2
No state includes all 56 recommended potentially fatal, but treatable, diseases in its Newborn Screening Program. Currently, New York and Missouri are the only states that screen newborns for Krabbe Disease.

With your help, we can save babies’
lives by ensuring that
Every Child. Every Time. Everywhere.™ is screened for every possible disease, including Krabbe, at birth.


Take Action to tell your state lawmakers why Expanded & Universal Newborn Screening should be a reality in all states.  Ask your friends, family - everyone you know to do the same.
Be the voice for those who have none.

Take Action for Newborn Screening

Take Action!
Help us advocate for Expanded Newborn Screening in Every State.

Support Expanded Newborn Screening in Your State
Ask your state lawmakers to increase the number of diseases that your state screens for at birth.
New alerts will be added as opportunities for expanded newborn screening arise. If there's activity going on in your state, we'd like to help - please let us know by emailing unbs@huntershope.org.


How Early Detection Saved Zoey's Life

NBS_Zoey_Climbing_Stairs_Cropped
Zoey, who received a cord blood transplant when she was born in 2005, is a beautiful example of the difference that early detection and treatment for Krabbe Disease can make in a child's life.

By taking action in your state, you can help ensure that every child has the same chance at life as Zoey.

Learn more about Zoey and her story...


     
 
 HH Logo and Type_Vertical_Grey Background

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 

 


About Us

Mission
Hunter
Kelly Family Story
Hunter's Hope Team

Research
HJKRI Clinical Center
HJKRI Basic Science Center
Extramaural Research
Medical & Science Symposium
Research Publications
Historical Research

 


Krabbe and Leukodystrophies

About Krabbe
About Leukodystrophies

Newborn Screening
What is NBS?
Krabbe NBS
State and Federal Info
Take Action
Families Taking Action
Supplemental NBS
Why NBS?

 


Family Care

Wall of Fame
Affected Family Registration
Hope for Life
Family & Medical Symposium
Hunter's Homes
Equipment & Supply Exchange
Hunter's Wish Gift
Kaden's Kisses

 


Get Involved

Jim Kelly's Every Score
Jill Kelly's Every Sister
Every Step Walk
Special Events & Campaigns
Hunter's Day of Hope & Prayer for Children
Strategic Partners
Volunteer

News

Calendar

Donate

   
  6368 West Quaker Street, PO Box 643, Orchard Park, NY 14127 |  (716) 667-1200