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No state includes all 56 recommended potentially fatal, but treatable, diseases in its Newborn Screening Program. Currently, New York and Missouri are the only states that screen newborns for Krabbe Disease.

With your help, we can save babies’
lives by ensuring that
Every Child. Every Time. Everywhere.™ is screened for every possible disease, including Krabbe, at birth.


Take Action to tell your state lawmakers why Expanded & Universal Newborn Screening should be a reality in all states.  Ask your friends, family - everyone you know to do the same.
Be the voice for those who have none.

Take Action for Newborn Screening

Take Action!
Help us advocate for Expanded Newborn Screening in Every State.

California - Support AB 1559 for Expanded Newborn Screening
Ask your California lawmakers to support AB 1559 to include ALD in the diseases CA screens its babies for at birth.
Pennsylvania - Support HB 1654 for Expanded Newborn Screening
Ask your state lawmakers to support legislation to increase the number of diseases that Pennsylvania screens its babies for at birth, including Krabbe.
Support the Newborn Screening Saves Lives Reauthorization Act
ALL States - Ask members of Congress to support the Newborn Screening Saves Lives Reauthorization Act to help fund newborn screening programs across the U.S.
Support Expanded Newborn Screening in Your State
Ask your state lawmakers to increase the number of diseases that your state screens for at birth.
New alerts will be added as opportunities for expanded newborn screening arise. If there's activity going on in your state, we'd like to help - please let us know by emailing unbs@huntershope.org.


How Early Detection Saved Zoey's Life

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Zoey, who received a cord blood transplant when she was born in 2005, is a beautiful example of the difference that early detection and treatment for Krabbe Disease can make in a child's life.

By taking action in your state, you can help ensure that every child has the same chance at life as Zoey.

Learn more about Zoey and her story...