Every StepResource Tool Kit

My Every Step
  

Walk Information

Fundraise

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Every Step Location_Symposium 

Saturday, August 4, 2012 
Holiday Valley
Ellicottville, NY

 

  We've Raised: $3,480.00

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More details coming soon!

Meet Our Families  

Top Fundraisers 

 The Every Step Symposium Walk is held in honor of all Krabbe & Leukodystrophy families.

Families from across the US and throughout the world walk together while in Western New York for the annual Family & Medical Symposium, or participate as a virtual walker in their own home town.

The local community is also invited to walk in this special day!

To learn more about the children we honor, we invite you to visit the Hunter's Hope Wall of Fame.

    1 -  $500 for Hope Kristal Abner ($535.00)
  2 -  $100 for Hope Elias Wendland ($400.00)
  3 -  $100 for Hope Tammy Wilson ($235.00)
  4 -  $100 for Hope Mary Kelling ($210.00)
  5 -  $100 for Hope Eden Brooks ($200.00)
  6 -  $100 for Hope Michael Damico ($200.00)
  7 -  $100 for Hope Katelynn Abner ($160.00)
  8 -  $100 for Hope Natasha Spencer ($160.00)
  9 -  $100 for Hope Diane Rypma ($125.00)
  10 -  $100 for Hope Anthony Esquerdo ($100.00)

     
Newborn Screening

Every Step Counts!

  Top Teams 

Currently, only babies born in
New York State are screened for
Krabbe Leukodystrophy at birth.

Hunter's Hope families throught
the world are committed to
changing that...

Learn more about how
families are making a difference
for newborn screening...

With Every Step you take,
you're helping to educate others,
advocate for newborn screening,
advance research efforts and
support families affected by
Krabbe & other Leukodystrophies.

Tell your story - your voice is
important!

Learn more about how
Every Step
you take is
making a difference...

    1 -  Katelynn's butterfly kisses ($895.00)
  2 -  Elias Wendland ($400.00)
  3 -  Edie's Sweeties ($390.00)
  4 -  Marshall's Mob ($245.00)
  5 -  Strength Beyond Strength ($150.00)
  6 -  Madison's Mission ($125.00)
  7 -  Team Tennessee Dancing with Dylan ($20.00)
 

Event Information
 

Each year, to kick off the walk, we hold a balloon release in memory of all Krabbe and Leukodystrophy children who are no longer with us, and in honor of those we are so blessed to have in our lives!

Download event flyer
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THANK YOU TO OUR SPONSORS
We can't say thank you enough to our generous sponsors! Please help support the businesses that support us.
Interested in sponsoring the event? Contact us today to learn more...


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