Would you like to win a vacation? You can by using your walk Participant Center! One email = One chance The more emails you send out the more times your name will be entered! More details coming soon!
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Meet Our Families
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Top Fundraisers |
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The Every Step Symposium Walk is held in honor of all Krabbe & Leukodystrophy families.
Families from across the US and throughout the world walk together while in Western New York for the annual Family & Medical Symposium, or participate as a virtual walker in their own home town.
The local community is also invited to walk in this special day!
To learn more about the children we honor, we invite you to visit the Hunter's Hope Wall of Fame.
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1 -
Kristal Abner ($535.00)
2 -
Elias Wendland ($400.00)
3 -
Tammy Wilson ($235.00)
4 -
Mary Kelling ($210.00)
5 -
Eden Brooks ($200.00)
6 -
Michael Damico ($200.00)
7 -
Katelynn Abner ($160.00)
8 -
Natasha Spencer ($160.00)
9 -
Diane Rypma ($125.00)
10 -
Anthony Esquerdo ($100.00)
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| Newborn Screening |
Every Step Counts!
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Top Teams |
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Currently, only babies born in New York State are screened for Krabbe Leukodystrophy at birth.
Hunter's Hope families throught the world are committed to changing that...
Learn more about how families are making a difference for newborn screening...
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With Every Step you take, you're helping to educate others, advocate for newborn screening, advance research efforts and support families affected by Krabbe & other Leukodystrophies.
Tell your story - your voice is important!
Learn more about how Every Step you take is making a difference...
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1 -
Katelynn's butterfly kisses ($895.00)
2 -
Elias Wendland ($400.00)
3 -
Edie's Sweeties ($390.00)
4 -
Marshall's Mob ($245.00)
5 -
Strength Beyond Strength ($150.00)
6 -
Madison's Mission ($125.00)
7 -
Team Tennessee Dancing with Dylan ($20.00)
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Event Information
Each year, to kick off the walk, we hold a balloon release in memory of all Krabbe and Leukodystrophy children who are no longer with us, and in honor of those we are so blessed to have in our lives!
Download event flyer

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THANK YOU TO OUR SPONSORS We can't say thank you enough to our generous sponsors! Please help support the businesses that support us. Interested in sponsoring the event? Contact us today to learn more...

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