20 Years of Family

We celebrated the 20th Anniversary of Hunter’s Hope at the 2018 Symposium.
Watch this video, 20 Years of Family, to learn more about this life-changing week…

2019 Family Symposium

July 24th – 28th  2019
Holiday Valley Resort, Ellicottville, NY

Family Registration is now CLOSED. We have reached our capacity. If you have any questions about registration, please contact us at symposium@huntershope.org.

The Hunter’s Hope annual Family and Medical Symposium brings together the world’s leading Leukodystrophy experts with families affected by these diseases for a week of learning, sharing and fun.

Two words to accurately sum up the Hunter’s Hope Family Symposium are FREEDOM and HOPE. The Symposium affords our families five days of freedom! Freedom to laugh, freedom to cry, freedom to ask any questions of others in similar circumstances, freedom to use their child’s suction machine, freedom to leave a meeting room and to come back – all without awkward stares or hurtful questions… FREEDOM!

The Symposium also offers HOPE! Families leave this week with a renewed hope from medical experts who relay knowledge of advancements in medical care, treatments, and research. They also receive hope by gaining insight from other families.

For families with a child affected by a Leukodystrophy, many simple, every day experiences can seem almost impossible. When families do venture out, it can be difficult because of the amount of medical equipment necessary just to keep their child breathing and comfortable. The Symposium is a place where everyone understands and life-long friendships can be formed with other families on a similar path. There is no judgment, only love.

For families in attendance, meals and accommodations are paid for by Hunter’s Hope. Travel arrangements to and from the event are the responsibility of the family but travel assistance is available for qualified families unable to cover these expenses.

Family Symposium Programs
2018 Family Symposium Program
2017 Family Symposium Program
2016 Family Symposium Program

The 2018 Family Symposium was made possible, in part, thanks to the generosity of The Jackson Project,  Kelly for Kids FoundationRalph C. Wilson, Jr. Foundation, and Thomas & Jeanne Elmezzi Foundation.

Medical Symposium

Families attending the 2017 Family and Medical Symposium

This annual multidisciplinary workshop brings together over 60 of the world’s leading experts in Leukodystrophies and newborn screening to discuss advances in medical care and research for these devastating diseases.

The 2018 Medical Symposium was made possible, in part, thanks to the generosity of Believing for BryleighBethanys HopeBuffalo Bills Foundation, and Vogt Family Foundation.

2019 Medical Symposium

July 22nd – 24th  2019
Holiday Valley Resort, Ellicottville, NY

Medical Symposium Programs
2018 Medical Symposium Program
2017 Medical Symposium Program
2016 Medical Symposium Program
2015 Medical Symposium Program
2014 Medical Symposium Program
2013 Medical Symposium Program
2012 Medical Symposium Program

For more information regarding the Family & Medical Symposium, please contact us here.