2020 Family Symposium
July 22 – 26, 2020
Holiday Valley Resort, Ellicottville, NY
The Hunter’s Hope annual Family and Medical Symposium brings together the world’s leading Leukodystrophy experts with families affected by these diseases for a week of learning, sharing and fun.
Two words to accurately sum up the Hunter’s Hope Family Symposium are FREEDOM and HOPE. The Symposium affords our families five days of freedom! Freedom to laugh, freedom to cry, freedom to ask any questions of others in similar circumstances, freedom to use their child’s suction machine, freedom to leave a meeting room and to come back – all without awkward stares or hurtful questions… FREEDOM!
The Symposium also offers HOPE! Families leave this week with a renewed hope from medical experts who relay knowledge of advancements in medical care, treatments, and research. They also receive hope by gaining insight from other families.
For families with a child affected by a Leukodystrophy, many simple, every day experiences can seem almost impossible. When families do venture out, it can be difficult because of the amount of medical equipment necessary just to keep their child breathing and comfortable. The Symposium is a place where everyone understands and life-long friendships can be formed with other families on a similar path. There is no judgment, only love.
For families in attendance, meals and accommodations are paid for by Hunter’s Hope. Travel arrangements to and from the event are the responsibility of the family but travel assistance is available for qualified families unable to cover these expenses.
Family Symposium Programs
The 2019 Family Symposium was made possible, in part, thanks to the generosity of Believing for Bryleigh, Bethanys Hope, Community Foundation for Greater Buffalo, The JacksonProject, The NFL Foundation, Ralph C. Wilson, Jr. Foundation, and Thomas & Jeanne Elmezzi Foundation.
To learn about the Medical Symposium, click here.
For more information regarding the Symposium, please contact us here.
What our Families Have to Say…
“We absolutely LOVE being with our Leukodystrophy family! When Hailey is here, she is home. Everyone welcomes her hugs and kisses. I can talk to them about anything and there is no judgment, just support, understanding, and love. Through everything that everyone is going through we find laughter together and it’s amazing.”
~ Jessica Gaston – Mom to Hailey (Unspecified Leukodystrophy), Las Vegas, Nevada
“It is unbelievable how refreshed I feel every year after leaving the Hunter’s Hope Symposium. It’s a feeling I can’t even explain, a family I am blessed to be part of. Every year the old relationships get stronger and new relationships are made. When we leave I feel like I’m leaving a bunch of brothers and sisters for a year; it is so tough. I cannot thank every person in this family enough for the welcoming and support they provide to Tenley and the rest of our family. 380 days until we meet again, but whose counting!!”
~Emily Thompson – Mom to Tenley (Krabbe Disease), Spicer, Minnesota