Thank you to our amazing Families, Sponsors, Holiday Valley, Volunteers, Brody Wheeler, and so many others who helped make this year’s Symposium a wonderful conference.

We look forward to next year’s Symposium – July 20th – 26th

The Hunter’s Hope annual Family and Medical Symposium brings together the world’s leading Leukodystrophy experts with families affected by these diseases for a week of learning, sharing and fun.

Two words to accurately sum up the Hunter’s Hope Family Symposium are FREEDOM and HOPE. The Symposium affords our families five days of freedom! Freedom to laugh, freedom to cry, freedom to ask any questions of others in similar circumstances, freedom to use their child’s suction machine, freedom to leave a meeting room and to come back – all without awkward stares or hurtful questions… FREEDOM!

The Symposium also offers HOPE! Families leave this week with a renewed hope from medical experts who relay knowledge of advancements in medical care, treatments, and research. They also receive hope by gaining insight from other families.

For families with a child affected by a Leukodystrophy, many simple, every day experiences can seem almost impossible. When families do venture out, it can be difficult because of the amount of medical equipment necessary just to keep their child breathing and comfortable. The Symposium is a place where everyone understands and life-long friendships can be formed with other families on a similar path. There is no judgment, only love.

For families in attendance, meals and accommodations are paid for by Hunter’s Hope. Travel arrangements to and from the event are the responsibility of the family but travel assistance is available for qualified families unable to cover these expenses.

Family Symposium Programs

2019 Family Symposium Program
2018 Family Symposium Program
2017 Family Symposium Program
2016 Family Symposium Program

The 2019 Family Symposium was made possible, in part, thanks to the generosity of Believing for BryleighBethanys Hope, Community Foundation for Greater Buffalo, The JacksonProjectThe NFL FoundationRalph C. Wilson, Jr. Foundation, and Thomas & Jeanne Elmezzi Foundation.

Medical Symposium

Families attending the 2017 Family and Medical Symposium

This annual multidisciplinary workshop brings together over 60 of the world’s leading experts in Leukodystrophies and newborn screening to discuss advances in medical care and research for these devastating diseases.

The 2019 Medical Symposium was made possible, in part, thanks to the generosity of Bluebird Bio, Passage Bio, PerkinElmer, and Retrophin Inc.

2020 Medical Symposium

July 20 – 23  2020
Holiday Valley Resort, Ellicottville, NY

Medical Symposium Programs

2019 Medical Symposium Program
2018 Medical Symposium Program
2017 Medical Symposium Program
2016 Medical Symposium Program


For more information regarding the Family & Medical Symposium, please contact us here.