“Those of us who knew Hunter will tell you that he changed us in profound ways. The grass somehow appeared greener, and the array of beauty that colors our world and the intricate details of creation became more vibrant. Simple things we were usually too busy to appreciate filled us with gratitude because, incredibly, God used the simplicity of the common to show us how uncommon simple things really are.

Hunter loved life… all of it. His suffering didn’t take away from his ability to enjoy life; it only made him enjoy what he could that much more.”

~ Excerpt from ‘Without a Word’, Chapter 8, ‘Hunter at One and Two’


Wall of Fame

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

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Family Symposium

The Hunter’s Hope annual Family Symposium brings together families affected by these diseases for a week of learning, sharing and fun.

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Wish Gift

Our Wish Gift Program helps families facing extreme financial stress attributed to the costs associated with caring for a child with Leukodystrophy. Requests are granted on a case-by-case basis and are limited to meeting needs that will enable an affected family to provide the best possible care for their child.

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Equipment and Supply Exchange

The Exchange and Supply Exchange program is designed to help fulfill the equipment and/or supply needs of Leukodystrophy children as well as help families place equipment and supplies that they are no longer using.

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Helpful Resources

There are many great resources available for families caring for a child with a Leukodystrophy. 

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