Affected Family Registration
If you or your child is affected by a Leukodystrophy, you are not alone.
Please register with Hunter’s Hope at the link below and we will contact you.
Living with Leukodystrophy
Families affected by a Leukodystrophy share their stories every day on social media. Their voices are unique, informative, and important and give a glimpse into the reality of living with a Leukodystrophy.
Click here to learn more
LCN Care Centers
The Leukodystrophy Care Network (LCN) is a network of medical experts and families dedicated to helping Leukodystrophy families.
Click here to find an LCN Center
Wall of Fame
Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.
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Wish Gift
Our Wish Gift Program helps families facing extreme financial stress attributed to the costs associated with caring for a child with Leukodystrophy. Requests are granted on a case-by-case basis and are limited to meeting needs that will enable an affected family to provide the best possible care for their child.
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Equipment and Supply Exchange
The Exchange and Supply Exchange program is designed to help fulfill the equipment and/or supply needs of Leukodystrophy children as well as help families place equipment and supplies that they are no longer using.
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Helpful Resources
There are many great resources available for families caring for a child with a Leukodystrophy.
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Family and Medical Symposium
As in 2020 and 2021, this year we will use a virtual format and extend this wonderful week electronically to all of our Leukodystrophy families globally using videoconference technology.
Click here to learn more