Hunter's Hope
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Donate
  • About Us
    • Mission
    • Hunter
    • Kelly Family Story
    • Hunter’s Hope Team
    • Annual Reports & Financials
  • Hope~Life
    • Podcast
    • Comfort Booklet
    • Without a Word
    • Prayers of Hope
    • Hunter’s Day of Hope & Prayer for Children
  • Families
    • Leukodystrophy Family Registration
    • Living with Leukodystrophy
    • Leukodystrophy Care Network
    • Wall of Fame
    • Wish Gift
    • Equipment & Supply Exchange
    • Helpful Resources
    • Symposium
  • Leukodystrophy
    • Leukodystrophies
      • Leukodystrophy Types
      • ALD
      • Alexander Disease
      • Krabbe Disease
      • Metachromatic Leukodystrophy
      • Unspecified Leukodystrophy
    • Leukodystrophy Care Network
      • LCN Organization
      • LCN Coordinating Center
      • LCN Leadership
      • LCN Care Centers
      • LCN Clinical Care Coordinators
      • LCN Clinical Practice Guidelines
      • LCN Family Stories
      • LCN Videos
      • LCN Funding Support
    • Leukodystrophy Resource Library
    • Clinical Trials and New Treatments
    • Symposium
  • Newborn Screening
    • What is Newborn Screening?
    • NBS Federal Advisory Committee
    • Krabbe Newborn Screening
    • Krabbe NBS Advisory Council
    • Krabbe Newborn Screening Publications
    • ALD Newborn Screening
    • Supplemental NBS
    • Take Action
  • Get Involved
    • Hunter’s Hero
    • Ways to Give
    • Strategic Partners
    • LCN Funding Support
    • Special Fundraisers
    • Jim Kelly’s NFL Draft Party
    • Volunteer
    • Donate
  • Shop
    • Gift Cards
    • Search for Product

Parent Survey

  1. Home
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  3. Krabbe Newborn Screening
  4. Parent Survey

Newborn Screening

What is Newborn Screening?

NBS Federal Advisory Committee

Krabbe Newborn Screening

Krabbe NBS Advisory Council

Krabbe NBS Publications

ALD Newborn Screening

Supplemental NBS

Take Action

States Screening for Krabbe Disease

Currently, 10 states include Krabbe Disease on their Newborn Screening Panels: NY, MO, KY, OH, TN, IL, IN, NJ, PA, and GA.

Why Newborn Screening?

Hope through NBS
Judson  Jimmy   PSA
Tim McGraw  Joe Namath
Chris Berman  Steve Largent

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Hunter's Hope

PO Box 643
Orchard Park, NY 14127
(716) 667-1200

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"For I know the plans I have for you," declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future."

Jeremiah 29:11

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