Thursday, July 23, 2020
LCN Certified Centers
Presenters:
Catie Becker – Massachusetts
Dr. Ali Fatemi – Maryland
Dr. Joanne Kurtzberg – North Carolina
Dr. Josh Bonkowsky – Utah
Dr. Stephanie Keller – Georgia
Dr. Jennifer Rubin – Illinois
Dr. Eric Mallack – New York
Dr. Robert Thompson-Stone – New York
LCN Center Care Coordinators
Presenter: Catie Becker
Leukodystrophy Updates
Krabbe Disease
Presenters: Dr. Joanne Kurtzberg and Dr. Joseph Orsini
MLD/CTX
Presenter: Dr. Michael Gelb
Adrenoleukodystrophy (ALD)
Presenter: Dr. Ali Fatemi
Krabbe NBS Patient Perspective Survey
Presenters: Natasha Spencer and Karlita Blackwell
Family Companion Clinical Practice Guidelines and Kids’ Companion
Presenters: Catie Becker, Sara Becker, and Grady Smith
Hunter’s Hope NBS Update
Presenter: Anna Grantham
ALD NBS Update
Presenter: Elisa Seeger
LCN Musculoskeletal Parent Guide
Presenter: Amy May
Hunter’s Hope Family Programs
Presenter: Jessica Ohlson