It should not be this hard to save a child’s life…
You can help! Take action here.
Did you know that a simple heel prick through a newborn screening test could have saved my grandson Hunter’s life? Well, it’s true. For diseases like Krabbe, early detection through newborn screening is crucial for affected children to receive potentially lifesaving treatment, which is only effective if administered before a child is symptomatic. Help ensure that the children in your state are screened at birth for Krabbe and similar diseases by Taking Action! Thank you!
A simple heel prick could have saved his life…
With Hope,
Jacque Waggoner
CEO & Hunter’s Grandmother