Did you know that a simple heel prick through a newborn screening test could have saved my grandson Hunter’s life? Well, it’s true. For diseases like Krabbe, early detection through newborn screening is crucial for affected children to receive potentially lifesaving treatment, which is only effective if administered before a child is symptomatic. Help ensure that the children in your state are screened at birth for Krabbe and similar diseases by Taking Action! Thank you!
A simple heel prick could have saved his life…
CEO & Hunter’s Grandmother
What is Newborn Screening?
Basic facts and information about Newborn Screening.Click here to learn more
Krabbe Newborn Screening
Information for parents whose child received a positive newborn screen for Krabbe Disease.Click here to learn more
ALD Newborn Screening
For ALD, early detection and treatment is essential to preventing irreversible mental or physical disabilities, even death.Click here to learn more
Order Supplemental Newborn Screening
Ensure your baby is screened at birth for Krabbe and other disorders through Supplemental Newborn Screening.Click here to learn more
Advocate for expanded Newborn Screening in your state.Click here to learn more