What our Families Have to Say…
“We absolutely LOVE being with our Leukodystrophy family! When Hailey is here, she is home. Everyone welcomes her hugs and kisses. I can talk to them about anything and there is no judgment, just support, understanding, and love. Through everything that everyone is going through we find laughter together and it’s amazing.”
~ Jessica Gaston – Mom to Hailey (Unspecified Leukodystrophy), Las Vegas, Nevada
“It is unbelievable how refreshed I feel every year after leaving the Hunter’s Hope Symposium. It’s a feeling I can’t even explain, a family I am blessed to be part of. Every year the old relationships get stronger and new relationships are made. When we leave I feel like I’m leaving a bunch of brothers and sisters for a year; it is so tough. I cannot thank every person in this family enough for the welcoming and support they provide to Tenley and the rest of our family. 380 days until we meet again, but whose counting!!”