What our Families Have to Say…
“I love that the HH Symposium is a place where we can exhale. We don’t worry about the extra that we have to do for our unique family because the whole conference is perfect for our family. It is truly a place where we feel welcomed and can relax, and everyone is so great, even our family of introverts has made friends each year. Everyone goes out of their way to include us and each other, it’s wonderful. And going from 100 degrees to the gorgeous trees and hills, makes us appreciate the wonders of nature. It is really a perfect place and the programs were all excellent. Thank you so much!”
~ Marily Schmiedel – Mom to Maddy (BLOCS1 Hypomyelinating Leukodystrophy), Pflugerville, Texas
~ Jessica Gaston – Mom to Hailey (Unspecified Leukodystrophy), Las Vegas, Nevada
“It is unbelievable how refreshed I feel every year after leaving the Hunter’s Hope Symposium. It’s a feeling I can’t even explain, a family I am blessed to be part of. Every year the old relationships get stronger and new relationships are made. When we leave I feel like I’m leaving a bunch of brothers and sisters for a year; it is so tough. I cannot thank every person in this family enough for the welcoming and support they provide to Tenley and the rest of our family. 380 days until we meet again, but whose counting!!”
Symposium Prayers
Please join us in thanking God for this year’s Symposium and our Leukodystrophy Community. It was a truly wonderful week! Click here.
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Family Symposium
In Person & Virtual
July 16 – 20
Holiday Valley Resort
Ellicottville, NY
Medical Symposium
In Person & Virtual
July 14 – 16
Holiday Valley Resort
Ellicottville, NY
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Family Symposium
In Person
July 17 – 21
Holiday Valley Resort
Ellicottville, NY
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Medical Symposium
In Person
July 15 – 17
Holiday Valley Resort
Ellicottville, NY
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Family Symposium
In Person
July 19 – 23
Holiday Valley Resort
Ellicottville, NY
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Medical Symposium
Hunter’s Hope Medical Symposium
In Person & Virtual
July 17 – 19
Holiday Valley Resort
Ellicottville, NY
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Past Symposium Programs
Hunter’s Hope has had Family and Medical Symposiums since the beginning of the foundation over 20 years ago. Each year they have become more exciting and attended by more medical and scientific professionals and affected families.
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Past Symposium Presentations
Since 2020 the Symposiums have been virtual and recorded. You now have the wonderful opportunity to learn from the experts at a time that works for you.