What our Families Have to Say…

“We absolutely LOVE being with our Leukodystrophy family! When Hailey is here, she is home. Everyone welcomes her hugs and kisses. I can talk to them about anything and there is no judgment, just support, understanding, and love. Through everything that everyone is going through we find laughter together and it’s amazing.”

~ Jessica Gaston – Mom to Hailey (Unspecified Leukodystrophy), Las Vegas, Nevada

“It is unbelievable how refreshed I feel every year after leaving ‪the Hunter’s Hope Symposium‬‬. It’s a feeling I can’t even explain, a family I am blessed to be part of. Every year the old relationships get stronger and new relationships are made. When we leave I feel like I’m leaving a bunch of brothers and sisters for a year; it is so tough. I cannot thank every person in this family enough for the welcoming and support they provide to Tenley and the rest of our family. 380 days until we meet again, but whose counting!!”


Family Symposium

In Person

July 17 – 21

Holiday Valley Resort

Ellicottville, NY

Medical Symposium

In Person

July 15 – 17

Holiday Valley Resort

Ellicottville, NY

Family Symposium

In Person

July 19 – 23

Holiday Valley Resort

Ellicottville, NY

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Medical Symposium

Hunter’s Hope Medical Symposium

In Person & Virtual

July 17 – 19

Holiday Valley Resort

Ellicottville, NY

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July 19-22

Global Virtual Leukodystrophy Symposium

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July 20-23

Global Virtual Leukodystrophy Symposium

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July 21-24

Global Virtual Leukodystrophy Symposium

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Past Symposium Programs

Hunter’s Hope has had Family and Medical Symposiums since the beginning of the foundation over 20 years ago. Each year they have become more exciting and attended by more medical and scientific professionals and affected families.

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Past Symposium Presentations

Since 2020 the Symposiums have been virtual and recorded. You now have the wonderful opportunity to learn from the experts at a time that works for you.