Affected Family Registration
If you or your child is affected by a Leukodystrophy, you are not alone.
Please register with Hunter’s Hope at the link below and we will contact you.
Living with Leukodystrophy
Families affected by a Leukodystrophy share their stories every day on social media. Their voices are unique, informative, and important and give a glimpse into the reality of living with a Leukodystrophy.
Click here to learn moreLCN Care Centers
The Leukodystrophy Care Network (LCN) is a network of medical experts and families dedicated to helping Leukodystrophy families.
Click here to find an LCN CenterFamily Programs & Resources
Family Programs include Wall of Fame, Hunter’s Wish Gift, Equipment & Exchange, and Resources.
Click here to learn more...Family and Medical Symposium
The Hunter’s Hope Family Symposium is a time for Leukodystrophy families to gather for love, learning, sharing, and Hope.
Click here to learn more