Affected Family Registration

If you or your child is affected by a Leukodystrophy, you are not alone.
Please register with Hunter’s Hope at the link below and we will contact you.

Click here to learn more

Living with Leukodystrophy

Families affected by a Leukodystrophy share their stories every day on social media. Their voices are unique, informative, and important and give a glimpse into the reality of living with a Leukodystrophy.

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LCN Care Centers

The Leukodystrophy Care Network (LCN) is a network of medical experts and families dedicated to helping Leukodystrophy families. 

Click here to find an LCN Center

Family Programs

Family Programs include Wall of Fame, Hunter’s Wish Gift, and Equipment & Supply Exchange.

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Resource Library

This is a library for affected families, medical professionals, scientists, and others with interest. It was created to provide easy access for the entire Leukodystrophy community and others who may benefit from the information and hope shared.

Click to visit our Library...

Family and Medical Symposium

The Hunter’s Hope Family Symposium is a time for Leukodystrophy families to gather for love, learning, sharing, and Hope. 

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LCN Family Collection

The Leukodystrophy Care Network (LCN) Collection is a special line of products created in honor of families affected by Leukodystrophy. This collection serves as both a tribute to these families and a means of raising awareness and support for those living with Leukodystrophy. Each family within the network has their own unique product line featuring items adorned with their personalized family logo.

Click here to learn more