If you or your child is affected by a Leukodystrophy, you are not alone. Hunter’s Hope Foundation is fully committed to providing encouragement, education and support to affected families.
Leukodystrophy Care Network
The LCN is a network of medical providers, hospitals, leukodystrophy organizations and affected families. Our mission is to revolutionize the health and quality of life of individuals affected by Leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers throughout the U.S., Canada and eventually the world.Click here to learn more
There are over 50 identified Leukodystrophies, which are genetic, progressive disorders that affect the brain, spinal cord and nervous systems. Alone, each Leukodystrophy may be considered rare, but as a group, Leukodystrophies affect approximately 1 in 4700 individuals.Click here to learn more
This annual Symposium is held each year for families to come together, reconnect with old friends and make new friends. Our goal is to provide our families with a fun, relaxing and fulfilling time, while learning from medical experts about these devastating diseases.Click here to learn more