LCN Organization
Learn about the Hunter’s Hope Foundation Leukodystrophy Care Network (LCN) Vision, Mission, Core Values, Strategy, Leadership, and Coordinating Center.
Click here to learn moreLCN Coordinating Center
The LCN is a network of Centers administered through a Coordinating Center.
Click here to learn moreLCN Leadership
The LCN Steering Committee is comprised of family members affected by Leukodystrophy and provides leadership, direction and oversight for the LCN.
Click here to find out moreLCN Care Centers
The LCN Centers provide innovative therapies, treatment options, expert care and information to families affected by Leukodystrophies.
Click here to learn moreLCN Clinical Care Coordinators
The LCN is committed to providing patient-centered, multidisciplinary, expert care to all individuals affected by Leukodystrophies. The Clinical Care Coordinator is crucial to implementing these standards at each Leukodystrophy Care Center.
Click here to learn moreLCN Clinical Practice Guidelines
Clinical Practice Guidelines establish a published, peer-reviewed standard of care to ensure that individuals with Leukodystrophy have the best possible medical care, improving length and quality of life.
Click here to learn moreLCN Membership
Join the Network!
When you join the Hunter’s Hope Foundation Leukodystrophy Care Network (LCN), you’ll receive updates about the LCN and the leukodystrophy community, and have the opportunity to connect with other LCN members. Anyone can join the network – medical providers, families, industry partners, and supporters..
It’s free to join and you choose your level of involvement.
Click here to learn moreLCN Family Stories
Learn the stories of some of our LCN Steering Committee members.
Click here to learn moreLCN Funding Support
The LCN is a not-for-profit and depends on public support to fund programs critical to making world class care and resources available to all who are affected. With your support major programs including Certified Care Centers, Clinical Practice Guidelines, Education and Awareness, Data Registry, and Family Support are changing lives.
Click here to learn more