Hope ~ Life
Leukodystrophy ~ Newborn Screening
“For I know the plans I have for you,” declares the Lord,
“plans to prosper you and not to harm you, plans to give you hope and a future.”
~ Jeremiah 29:11
Leukodystrophy Care Network
The Leukodystrophy Care Network (LCN), established in 2015, is a network of medical providers, hospitals, leukodystrophy organizations and affected families. Our mission is to revolutionize the health and quality of life of individuals affected by Leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers throughout the U.S., Canada and eventually the world.
Click here to learn more
Wall of Fame
With great honor we present to you children affected by Leukodystrophy…
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Pregnant? Newborn Screening
Find out what diseases your state screens for and how you can purchase supplemental newborn screening for Krabbe, ALD and similar diseases. If you have just received a positive screen, you can find helpful information and more…
Click here to learn more
About the Kelly Family
Learn about the Kelly Family Story. Read their story in Without a Word.
Light Your Heart with Hope
The Hunter’s Hope logo is a candle flame in a heart. It represents the light of Christ in our hearts. “For God, who said, ‘Let light shine out of darkness,’ made His light shine in our hearts to give us the light of the knowledge of the glory of God in the face of Christ.” ~ 2 Corinthians 4:6
Hunter’s Day of Hope
2019 in Review
2019 has been a great year for Hunter's Hope and our Leukodystrophy Family.
Learn more here.
Krabbe Family NBS Perspective
If you are a family affected by Krabbe Disease, please join the Blackwell Family and take this survey aimed to improve the lives of children affected by Krabbe Disease. Click here to take the Survey
