Hunter’s Hope Foundation is a non-profit organization committed to giving hope through education and awareness, research, and family care for Leukodystrophies and Newborn Screening for
Every Child. Every Time. Everywhere.

Hope ~ Life
Leukodystrophy ~ Newborn Screening

“For I know the plans I have for you,” declares the Lord,
“plans to prosper you and not to harm you, plans to give you hope and a future.”
~ Jeremiah 29:11

Week of Giving

Please join Hunter’s Hope for a Week of Giving as we unite to support children and families affected by a Leukodystrophy. It’s a time for us to come together as a community, celebrate our accomplishments, spread the word about Hunter’s Hope, and make a difference in the Leukodystrophy community.

Click here to find out more

Light Your Heart with Hope

The Hunter’s Hope logo is a candle flame in a heart. It represents the light of Christ in our hearts. “For God, who said, ‘Let light shine out of darkness,’ made His light shine in our hearts to give us the light of the knowledge of the glory of God in the face of Christ.” ~ 2 Corinthians 4:6

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Affected Family Registration

Become a member of our Hunter’s Hope Family by registering as an Affected Family. Together, we will win the battle against these devastating diseases. Click here to Register.

Click here to learn about our Family Programs

Leukodystrophy Care Network

The Leukodystrophy Care Network (LCN), established in 2015, is a network of medical providers, hospitals, leukodystrophy organizations and affected families. Our mission is to revolutionize the health and quality of life of individuals affected by Leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers throughout the U.S., Canada and eventually the world.

Click here to learn more

About the Kelly Family

Learn about the Kelly Family Story. Read their story in Without a Word.

Click here to learn more
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