Hunter’s Hope Foundation is a non-profit organization committed to giving hope through education and awareness, research, and family care for Leukodystrophies and Newborn Screening for
Every Child. Every Time. Everywhere.

Hope ~ Life
Leukodystrophy ~ Newborn Screening

“For I know the plans I have for you,” declares the Lord,
“plans to prosper you and not to harm you, plans to give you hope and a future.”
~ Jeremiah 29:11

Leukodystrophy Care Network

The Leukodystrophy Care Network (LCN), established in 2015, is a network of medical providers, hospitals, leukodystrophy organizations and affected families. Our mission is to revolutionize the health and quality of life of individuals affected by Leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers throughout the U.S., Canada and eventually the world.

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Wall of Fame

With great honor we present to you children affected by Leukodystrophy…

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Pregnant? Newborn Screening

Find out what diseases your state screens for and how you can purchase supplemental newborn screening for Krabbe, ALD and similar diseases. If you have just received a positive screen, you can find helpful information and more…

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About Hunter

Our lives are forever changed…

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Kelly Family

About the Kelly Family

Learn about the Kelly Family Story. Read their story in Without a Word.

HH logo

Light Your Heart with Hope

The Hunter’s Hope logo is a candle flame in a heart. It represents the light of Christ in our hearts. “For God, who said, ‘Let light shine out of darkness,’ made His light shine in our hearts to give us the light of the knowledge of the glory of God in the face of Christ.” ~ 2 Corinthians 4:6