Hope ~ Life
Leukodystrophy ~ Newborn Screening
“For I know the plans I have for you,” declares the Lord,
“plans to prosper you and not to harm you, plans to give you hope and a future.”
~ Jeremiah 29:11
Leukodystrophy Care Network
The Leukodystrophy Care Network (LCN), established in 2015, is a network of medical providers, hospitals, leukodystrophy organizations and affected families. Our mission is to revolutionize the health and quality of life of individuals affected by Leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers throughout the U.S., Canada and eventually the world.
Click here to learn more
Wall of Fame
With great honor we present to you children affected by Leukodystrophy…
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Pregnant? Newborn Screening
Find out what diseases your state screens for and how you can purchase supplemental newborn screening for Krabbe, ALD and similar diseases. If you have just received a positive screen, you can find helpful information and more…
Click here to learn more
About the Kelly Family
Learn about the Kelly Family Story. Read their story in Without a Word.
Light Your Heart with Hope
The Hunter’s Hope logo is a candle flame in a heart. It represents the light of Christ in our hearts. “For God, who said, ‘Let light shine out of darkness,’ made His light shine in our hearts to give us the light of the knowledge of the glory of God in the face of Christ.” ~ 2 Corinthians 4:6
Family Symposium
At the Hunter's Hope Family Symposium
July 24 - 28, 2019
Leukodystrophy Families experience Freedom, Love and Hope.
Please help and Give Today
Glory Years
Join Jim Kelly as he shares behind the scenes stories and details from Buffalo’s infamous four Super Bowl appearances.
August 7, 2019
6pm- 9:30pm
Midtown Athletic Club
Rochester, NY
Learn more here.
