Hunter’s Hope Foundation is a non-profit organization committed to giving hope through education and awareness, research, and family care for Leukodystrophies and Newborn Screening for

Hope ~ Life
Leukodystrophy ~ Newborn Screening

“For I know the plans I have for you,” declares the Lord,
“plans to prosper you and not to harm you, plans to give you hope and a future.”
~ Jeremiah 29:11



The Light Your Heart With Hope podcast is founded on the belief that our stories matter… not just in the here and now, but for eternity. We share testimonies of hope that point to the greater hope found in Christ. Our prayer is that you will be encouraged to share your own story. 

Click here to learn about our Podcast

Affected Family Registration

Become a member of our Hunter’s Hope Family by registering as an Affected Family. Together, we will win the battle against these devastating diseases. Click here to Register.

Click here to learn about our Family Programs

Newborn Screening (NBS)

Newborn Screening (NBS) is a public health program where infants are screened shortly after birth for a list of conditions not clinically evident early in life. NBS looks for serious developmental, genetic, and metabolic disorders that would not otherwise be detected in time for life-altering treatment. For these disorders, early detection and treatment is essential to preventing irreversible mental or physical disabilities, even death.

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Leukodystrophy Care Network

The Leukodystrophy Care Network (LCN) mission is to revolutionize the health and quality of life of individuals affected by Leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers.

Importance of the LCN – video

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Light Your Heart With Hope

The Hunter’s Hope logo is a candle flame in a heart. It represents the light of Christ in our hearts. “For God, who said, ‘Let light shine out of darkness,’ made His light shine in our hearts to give us the light of the knowledge of the glory of God in the face of Christ.” ~ 2 Corinthians 4:6

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About the Kelly Family

Learn about the Kelly Family Story. Read their story in Without a Word.

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