Hope ~ Life
Leukodystrophy ~ Newborn Screening
“For I know the plans I have for you,” declares the Lord,
“plans to prosper you and not to harm you, plans to give you hope and a future.”
~ Jeremiah 29:11
“For I know the plans I have for you,” declares the Lord,
“plans to prosper you and not to harm you, plans to give you hope and a future.”
~ Jeremiah 29:11
Today, January 30, 2024, in a landmark moment, the Federal Newborn Screening Advisory Committee voted to add Krabbe Disease to their Recommended Newborn Screening Panel. This decision, a result of over twenty years of unrelenting advocacy, brings us a step closer to our collective aim of screening every newborn for Krabbe Disease.
This victory is a testament to the tireless efforts of the Hunter’s Hope Foundation, the Kelly Family, the Krabbe Community, and a beacon of hope for children who are affected by this disease in the future.
With newborns now being screened for Krabbe at birth, this opens the door to early detection and lifesaving treatments.
We are genuinely moved by the support we’ve garnered in achieving this milestone and continue to steadfastly work towards our mission for all Leukodystrophies.
We invite you to join us in our mission to improve the lives of these courageous children battling for their future.
You can support our Newborn Screening advocacy efforts here.
You can learn more about the Federal Newborn Screening Advisory Committee here.