Hunter's Hope
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  • Leukodystrophies
    • Leukodystrophy Care Network
      • LCN Leadership
      • LCN Coordinating Center
      • LCN Care Centers
      • LCN Clinical Practice Guidelines
    • About Leukodystrophies
      • Adrenoleukodystrophy (ALD)
      • Aicardi-Goutières Syndrome (AGS)
      • Alexander Disease
      • Metachromatic Leukodystrophy
      • Krabbe Disease
      • Pelizaeus-Merzbacher Disease
      • Unspecified Leukodystrophy
      • Vanishing White Matter Disease
    • Wall Of Fame
    • Help for Affected Families
    • Family & Medical Symposium
    • Equipment & Supply Exchange
    • Wish Gift
  • Research
  • Newborn Screening
    • What is Newborn Screening?
    • Krabbe Disease Screening
    • Take Action
    • Supplemental Newborn Screening
  • Get Involved
    • Hunter’s Hero
    • Hunter’s Day of Hope & Prayer for Children
    • Kelly Tough
    • Jim Kelly’s NFL Draft Party
    • Special Fundraisers
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    • Volunteer
  • Shop for Hope
    • Supplemental Newborn Screening
    • Bears – Collectible, Limited Edition
    • Hunter’s Hero
    • Kelly Family Books
    • “Light Your Heart With Hope”
    • Kelly Tough Gear
    • h.b.
Donate
  • Leukodystrophies
    • Leukodystrophy Care Network
      • LCN Leadership
      • LCN Coordinating Center
      • LCN Care Centers
      • LCN Clinical Practice Guidelines
    • About Leukodystrophies
      • Adrenoleukodystrophy (ALD)
      • Aicardi-Goutières Syndrome (AGS)
      • Alexander Disease
      • Metachromatic Leukodystrophy
      • Krabbe Disease
      • Pelizaeus-Merzbacher Disease
      • Unspecified Leukodystrophy
      • Vanishing White Matter Disease
    • Wall Of Fame
    • Help for Affected Families
    • Family & Medical Symposium
    • Equipment & Supply Exchange
    • Wish Gift
  • Research
  • Newborn Screening
    • What is Newborn Screening?
    • Krabbe Disease Screening
    • Take Action
    • Supplemental Newborn Screening
  • Get Involved
    • Hunter’s Hero
    • Hunter’s Day of Hope & Prayer for Children
    • Kelly Tough
    • Jim Kelly’s NFL Draft Party
    • Special Fundraisers
    • Internship Program
    • Volunteer
  • Shop for Hope
    • Supplemental Newborn Screening
    • Bears – Collectible, Limited Edition
    • Hunter’s Hero
    • Kelly Family Books
    • “Light Your Heart With Hope”
    • Kelly Tough Gear
    • h.b.

LCN Videos

  1. Home
  2. Leukodystrophy Care Network (LCN)
  3. About Leukodystrophy Care Network
  4. LCN Videos

Learn more about the important work of the LCN…

Watch the Full LCN Video…

We need your help to get there…  Donate Today

We are the Families –

https://vtpkb4cbz742mpwjg43ich01-wpengine.netdna-ssl.com/wp-content/uploads/2015/11/LCN-Parent-Letter-640x360.mp4
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Mission

Revolutionizing the health and quality of life of individuals affected by Leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers throughout the U.S., Canada and eventually the world.

Leadership

The LCN is led by a Steering Committee of Family Advocates, supported by Leukodystrophy medical specialists and Hunter's Hope staff.  Learn more here.

LCN Videos

Leukodystrophy Families and Medical Experts share the vision and work of the LCN -- Watch our LCN videos here.

Coordinating Center

The LCN is a network of Centers administered through a Coordinating Center.  Learn more here.

Care Centers

The Leukodystrophy Care Centers (LCC) provide Early Diagnosis, Treatment, Multidisciplinary Approach, Preventive Medicine, Symptom Management, Education, and Emotional Support.

Learn more here.

Clinical Practice Guidelines (CPGs)

CPGs will establish a published, peer-reviewed standard of care to ensure that individuals with Leukodystrophy have the best possible medical care, improving length and quality of life.

Learn more here.

Clinical Trials

Learn more about Clinical Trials here.

LCN Funding Opportunities

Learn more here about how you can help support the LCN.

LCN Family Stories of Hope

Families affected by Leukodystrophies share how they have been touched by the LCN.

Read more here.

  • Column 1
    • Donate
    • About Us
      • Mission
      • Hunter
      • Kelly Family Story
      • Hunter’s Hope Team
    • Contact Us
  • Column 2
    • Leukodystrophies
      • Leukodystrophy Care Network
      • About Leukodystrophies
      • Wall Of Fame
      • Help for Affected Families
      • Family & Medical Symposium
      • Equipment & Supply Exchange
      • Wish Gift
  • Column 3
    • Newborn Screening
      • What is Newborn Screening?
      • Krabbe Disease Screening
      • Take Action
      • Supplemental Newborn Screening
    • Research
  • Column 4
    • Get Involved
      • Hunter’s Hero
      • Hunter’s Day of Hope
        and Prayer for Children
      • Kelly Tough
      • Dine Out For Hope
      • Jim Kelly’s NFL Draft Party
      • Volunteer
    • Shop for Hope
  • Home
  • Krabbe & Leukodystrophies
  • Research
  • Newborn Screening
  • About Leukodystrophy Care Network
  • Leukodystrophy Care Network (LCN)
  • Get Involved
  • About Us
  • Contact Us
Hunter's Hope

6368 West Quaker Street
PO Box 643
Orchard Park, NY 14127
(716) 667-1200

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© 2018 Hunter's Hope. All rights reserved.

"For I know the plans I have for you," declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future."

Jeremiah 29:11

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