Presentations from the 2020 Hunter’s Hope Virtual Symposium

Click Here to view presentations from the 2020 Hunter’s Hope Medical Symposium

Click Here to view presentations for the 2020 Hunter’s Hope Family Symposium

Leukodystrophy Disease Information from
2020 LCN Winter Meeting

Click here to view presentations about various Leukodystrophies. These presentations were created by LCN Care Coordinators and Family Advocates for the LCN 2020 Winter Meeting in Atlanta, GA.


Clinical Practice Guidelines (CPGs)

Leukodystrophy CPGs establish a published, peer-reviewed standard of care to ensure that individuals with Leukodystrophy have the best possible medical care, improving length and quality of life.

Newborn Screening (NBS)

Infantile Krabbe Disease Consensus Guidelines for NBS

Patient Perspectives on Krabbe Newborn Screening

Later Onset Krabbe Disease Consensus Guidelines for NBS – Coming Soon

Diagnosis

Coming Soon…

Treatment

Hematopoietic Stem Cell Transplantation to Treat Leukodystrophies


Symptom Management

Neurology

Family Guide

Musculoskeletal

Coming soon…

Pulmonary

Coming soon…