The Leukodystrophy Resource Library is a place to find valuable information developed through the LCN and shared at Hunter’s Hope meetings.


Resources for Children

“Just for Kids:  This Thing Called Leukodystrophy”

This is a special book written for kids by kids.

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Clinical Practice Guidelines

Leukodystrophy Clinical Practice Guidelines (CPGs) establish a published, peer-reviewed standard of care to ensure that individuals with Leukodystrophy have the best possible medical care, improving length and quality of life.

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2021 Medical Symposium Presentations

These presentations were recorded at the 2021 Global Virtual Leukodystrophy Symposiums.

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2020 Winter LCN Meeting Presentations

The following presentations were created and presented by LCN Care Coordinators and Family Advocates at the LCN 2020 Winter Meeting in Atlanta, GA. The purpose of the meeting was to share medical and family expertise in the various leukodystrophies.

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2020 Medical Symposium Presentations

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2020 Family Symposium Presentations

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