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Donate
  • About Us
    • Mission
    • Hunter
    • Kelly Family Story
    • Hunter’s Hope Team
    • Annual Reports & Financials
  • Hope~Life
    • Comfort Booklet
    • Without a Word
    • Prayers of Hope
    • Wonderful Bear
    • Hunter’s Day of Hope & Prayer for Children
  • Families
    • Leukodystrophy Family Registration
    • Leukodystrophy Care Network
    • Wall of Fame
    • Wish Gift
    • Equipment & Supply Exchange
    • Helpful Resources
    • Symposium
  • Leukodystrophy
    • Leukodystrophies
      • Leukodystrophy Types
      • ALD
      • Alexander Disease
      • Krabbe Disease
      • Metachromatic Leukodystrophy
      • Unspecified Leukodystrophy
    • Leukodystrophy Care Network
      • LCN Organization
      • LCN Coordinating Center
      • LCN Leadership
      • LCN Care Centers
      • LCN Clinical Care Coordinators
      • LCN Clinical Practice Guidelines
      • LCN Funding Support
    • Leukodystrophy Resource Library
    • Clinical Trials and New Treatments
    • Symposium
  • Newborn Screening
    • What is Newborn Screening?
    • Take Action
    • Krabbe Newborn Screening
    • Krabbe NBS Advisory Council
    • ALD Newborn Screening
    • Order Supplemental NBS
  • Get Involved
    • Hunter’s Hero
    • Ways to Give
    • Strategic Partners
    • LCN Funding Support
    • Special Fundraisers
    • Jim Kelly’s NFL Draft Party
    • Volunteer
    • Donate
  • Shop
    • Supplemental Newborn Screening
    • Books
    • Apparel
    • Bears – Collectible, Limited Edition
    • Hunter’s Hero
    • Kelly Family Books
    • “Light your Heart with Hope”
    • Kelly Tough Gear
    • Gift Cards
    • Search for Product

Newborn Screening (NBS)

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  4. LD Resource Library – CPGs
  5. Newborn Screening (NBS)

Newborn Screening Articles

Hunter’s Hope is committed to ensuring that all infants with a positive screen for Krabbe Disease have the best possible outcomes. We are proud to partner with a group of NBS and Krabbe Disease experts to make continual advancements for Krabbe NBS.

Consensus recommendations for Infants who Screen Positive for Krabbe Disease

Krabbe Newborn Screening: A Family Guide

The Critical Role of Psychosine in Screening, Diagnosis, and Monitoring of Krabbe Disease

Benefits of Newborn Screening and Hematopoietic Cell Transplant in Infantile Krabbe Disease

Krabbe Disease: New hope for an old disease

Advances in the Diagnosis and Treatment of Krabbe Disease

Patient Perspectives on Krabbe Newborn Screening

Infantile Krabbe Disease Consensus Guidelines for NBS

Leukodystrophy Care Network

LCN Organization

LCN Coordinating Center

LCN Leadership

LCN Care Centers

LCN Clinical Care Coordinators

LCN Clinical Practice Guidelines

LCN Family Stories

LCN Videos

LCN Funding Support

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Hunter's Hope

PO Box 643
Orchard Park, NY 14127
(716) 667-1200

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"For I know the plans I have for you," declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future."

Jeremiah 29:11

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