Positive Screen for Krabbe Disease
Krabbe Newborn Screening
If your child has received a positive newborn screen for Krabbe Disease, please know that regardless of the outcome, there is hope.
Krabbe NBS Council
The Council is led by Dr. Kurtzberg and other experts in Krabbe Newborn Screening to ensure that children identified through Krabbe NBS have the best possible outcomes. If you are a medical provider or NBS professional and would like to attend council meetings, please contact us at firstname.lastname@example.org.Click here to learn more
The Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) Committee advises the Secretary, U.S. Department of Health and Human Services on the most appropriate application of universal newborn screening tests, technologies, policies, guidelines, and standards.Click here to learn more about the ACHDNC
Krabbe Newborn Screening Publications
Hunter’s Hope is committed to ensuring that all infants with a positive screen for Krabbe Disease have the best possible outcomes. We are proud to partner with a group of NBS and Krabbe Disease experts to make continual advancements for Krabbe NBS. Learn more about the best practices for KD NBS and follow up through our Newborn Screening Articles linked below.Click here to learn more