The LCN is a network of Centers administered through a Coordinating Center. The LCN will utilize innovative tools such as medical videoconferencing, electronic medical record systems, and more.

The LCN Coordinating Center is:

  • Responsible for the administration and coordination of the LCN, working with the other Centers to ensure all affected individuals have access to the LCN and the most current information.
  • Providing assistance for medical experts in the LCN and helping the patient’s local medical teams in various regions throughout the United States and Canada care for affected individuals and their families.
  • Under the leadership of the LCN Steering Committee, the LCN will administer a peer-reviewed protocol to identify and qualify medical professionals and Centers throughout the United States and Canada.