Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to honor your child by adding them to the Wall of Fame, please click below and fill out the Wall of Fame form.

Wall of Fame Form

If your child is already on the Wall of Fame and you would like to update their information and/or photo, please contact us here.


Abner Family

Katelynn Abner

Metachromatic Leukodystrophy
(MLD)

Sallisaw, OK

Born: 10/31/08
Went to Heaven: 7/4/14

Ackerly Family

Auggie Ackerly

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bakersfield, CA

Born: 8/20/98
Went to Heaven: 3/28/99

Agee Family

Aiden Agee

Metachromatic Leukodystrophy
(MLD)

Lewiston, ID

Born: 5/7/05
Went to Heaven: 6/17/11

WOF-Fallon

Akers Family

Fallon Akers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fredericksburg, VA

Born: 3/18/13
Went to Heaven: 9/20/14

Al-Faifi Family

Yazan Al-Faifi

Metachromatic Leukodystrophy
(MLD)

Saudi Arabia

Born: 9/18/11

Aldrian Family

Trevor Aldrian

Globoid Cell Leukodystrophy
(Krabbe Disease)

Murrieta, CA

Born: 11/5/08
Trevor’s Caring Bridge Website
Peace Love Trevor Website

Allan Family

Laura Allan

Metachromatic Leukodystrophy
(MLD)

Chesterfield, UK

Born: 8/4/87

Almassri Family

Rawand Almassri

18q Syndrome with deficiency of myelin basic protein

Gaza

Born: 9/4/16

Almy Family

Karis Almy

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jackson, MS

Born: 6/29/09
Karis’s Website

WOF-Joaquin

Altavilla Family

Joaquin Altavilla

Globoid Cell Leukodystrophy
(Krabbe Disease)

Las Heras, Argentina

Born: 8/2/09
Went to Heaven: 2/28/11

WOF-Isaiah A.

Amador Family

Isaiah Amador

Globoid Cell Leukodystrophy
(Krabbe Disease)

Riverview, FL

Born: 11/27/11
Went to Heaven: 1/14/12

WOF-Viggo A.

Andersson Family

Viggo Andersson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Akarp, Sweden

Born: 3/6/10
Went to Heaven: 12/16/13

Anguiano Family

Daniel Anguiano

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dallas, TX

Born: 12/6/82
Went to Heaven: 3/6/87

Arizmendi Family

Evelyn Arizmendi

Globoid Cell Leukodystrophy
(Krabbe Disease)

Hebron, IN

Born: 9/6/14
Went to Heaven: 4/16/18

 

Armstrong Family

Matthew Armstrong

Vanishing White Matter Disease
(Childhood ataxia with diffuse central nervous system hypomyelination, or CACH)

Allen Park, MI

Born: 1/26/05

 

 

Hunter's Hope Wall of Fame

Arnieri Family

Ginevra Arnieri

Globoid Cell Leukodystrophy
(Krabbe Disease)

Alessandria, Italy

Born: 12/16/10
Went to Heaven: 2/13/17

WOF-Breanna

Arthurs Family

Breanna Arthurs

Globoid Cell Leukodystrophy
(Krabbe Disease)

Woodstock, ON Canada

Born: 9/19/02
Went to Heaven: 1/18/05

Atwi Family Child 1

Leya Atwi

Vanishing White Matter Disease
(Childhood ataxia with diffuse central nervous system hypomyelination or CACH)

Halifax, NS Canada

Born: 5/4/10
Went to Heaven: 3/23/11

 

Atwi Family Child 2

Adam Atwi

Vanishing White Matter Disease
(Childhood ataxia with diffuse central nervous system hypomyelination or CACH)

Halifax, NS Canada

Born: 10/31/15

Hunter's Hope Wall of Fame

Barnett Family

Max Barnett

Globoid Cell Leukodystrophy
(Krabbe Disease)

Phoenix, AZ

Born: 2/6/14
Went to Heaven:  6/24/16

WOF-Caysen

Barnett Family

Caysen Barnett

Metachromatic Leukodystrophy
(MLD)

Amarillo, TX

Born: 6/26/07
Went to Heaven: 7/16/12

WOF-Alissa

Barron Family Child 1

Alissa Barron

Globoid Cell Leukodystrophy (Krabbe Disease)

Oswego, IL

Born: 4/5/98

WOF-Elijah Barron

Barron Family Child 2

Elijah Barron

Globoid Cell Leukodystrophy (Krabbe Disease)

Oswego, IL

Born: 11/17/99
Transplant

WOF-Aaron B.

Bateman Family

Aaron Bateman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cambridge, United Kingdom

Born: 9/20/03
Went to Heaven: 10/16/05

WOF - Warrick

Bayford Family

Warrick Bayford

Globoid Cell Leukodystrophy
(Krabbe Disease)

Hemsworth, United Kingdom

Born: 8/11/09
Went to Heaven: 8/12/10

WOF-Anniston

Bazar Family

Anniston Bazar

Globoid Cell Leukodystrophy
(Krabbe Disease)

Church Point, LA

Born: 4/26/14
Always Anniston Facebook

WOF-Julia

Beatty Family

Julia Beatty

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chelsea, MI

Born: 12/27/97
Went to Heaven: 7/23/05

WOF-Reesa B.

Behnken-Brown Family

Reese Behnken

Metachromatic Leukodystrophy
(MLD)

Howell, NJ

Born: 6/14/04
Went to Heaven: 9/30/13

All Bears

Believe

Jesus called the children to Him and said, “Let the little children come to me, and do not hinder them, for the kingdom of God belongs to such as these.”
~ Luke 18:16

WOF-Brody

Bensel Family

Brody Bensel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Pilot Rock, OR

Born: 2/20/08
Went to Heaven: 2/11/11

WOF-Eden Benson

Benson Family

Eden Benson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Biddeford, ME

Born: 11/28/01
Went to Heaven: 10/31/02

WOF-Christopher B.

Benson Family

Christopher Benson

Alexander Disease

Austin, TX

Born: 12/20/04

WOF-Riley B.

Bentley Family

Riley Bentley

Canavan Disease

Rochester, NY

Born: 7/24/10
Hope for Riley

WOF-Neah

Bison Family

Neah Bison

Globoid Cell Leukodystrophy
(Krabbe Disease)

Hamburg, Germany

Born: 10/5/11
Went to Heaven: 8/7/12

WOF-Hugo

Bjarlestam Family

Hugo Bjarlestam

Globoid Cell Leukodystrophy
(Krabbe Disease)

Stockholm, Sweden

Born: 10/21/12
Went to Heaven: 6/27/14

Blackwell Family

Ezra Blackwell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ballwin, MO

Born: 10/8/16
Transplant

WOF-Garrett

Blanchard-Brown Family

Garrett Curtis Blanchard

Globoid Cell Leukodystrophy
(Krabbe Disease)

San Jacinto, CA

Born: 2/11/11
Went to Heaven: 12/10/11
Garrett’s Video

Bohmont Family

Emmett Bohmont

Globoid Cell Leukodystrophy
(Krabbe Disease)

Harrisburg, NC

Born: 11/8/17
Went to Heaven: 9/27/18

Addie Grace - Krabbe

Bolt Family

Addie Grace Bolt

Globoid Cell Leukodystrophy
(Krabbe Disease)

Easley, SC

Born: 12/28/14
Went to Heaven: 12/17/15

WOF-Elijah Bonney

Bonney Family

Elijah Bonney

Globoid Cell Leukodystrophy
(Krabbe Disease)

Barrington, RI

WOF-Olivia B.

Borodychuk Family

Olivia Borodychuk

Alexander Disease

Dewitt, MI

Born: 10/10/08
Went to Heaven: 4/28/17
Olivia Kay Website

WOF-Nicholas B.

Bourassa Family Child 1

Nicholas Bourassa

Globoid Cell Leukodystrophy
(Krabbe Disease)

New Milford, PA

Born: 3/18/02
Went to Heaven: 2/1/03

WOF-Joshua B.

Bourassa Family Child 2

Joshua Bourassa

Globoid Cell Leukodystrophy
(Krabbe Disease)

New Milford, PA

Born: 7/13/04
Transplant

WOF - Tori B.

Brackbill Family

Victoria “Tori” Brackbill

Globoid Cell Leukodystrophy
(Krabbe Disease)

Harrisburg, PA

Born: 7/30/14
Went to Heaven: 3/27/16

WOF-Joeson

Bramlett Family

Joeson Bramlett

Metachromatic Leukodystrophy
(MLD)

Rossville, GA

Born: 8/2/05
Transplant

Hunter's Hope Wall of Fame

Branch Family

William Branch

Globoid Cell Leukodystrophy
(Krabbe Disease)

Davenport, IA

Born: 6/8/14
Transplant

Sweet William’s Way Facebook

WOF-Eden Brooks

Brooks Family

Eden Brooks

Metachromatic Leukodystrophy
(MLD)

Fort Worth, TX

Born: 12/21/08
Went to Heaven: 11/4/16
Eden’s Caring Bridge

WOF-Eilish

Brown Family

Eilish Brown

Globoid Cell Leukodystrophy
(Krabbe Disease)

Leven, UK

Born: 11/16/13
Went to Heaven: 9/2/14

Brown Family

David Aaron

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durham, NC

Born: 12/2/97
Went to Heaven: 3/19/99

Brueske Family

Ryan John Brueske

Globoid Cell Leukodystrophy
(Krabbe Disease)

Granby, CO

Born: 4/20/89
Went to Heaven: 3/27/90