2024 Hunter’s Hope Medical Symposium
In Person and Virtual

The Hunter’s Hope Medical Symposium is a time for Leukodystrophy medical providers, newborn screening lab personnel, industry partners, researchers, and families from around the world to gather for learning, sharing, and Hope.

Please visit this page often for updates.

Families are welcome to attend all sessions virtually!

Symposium Speakers

Hunter’s Hope is accepting applications from medical, scientific, NBS, and industry professionals who would like to present at the 2024 Hunter’s Hope Symposium (July 15 – 17).

Speaker Applications are due April 15th.   Apply here.

Agenda Overview

Monday, July 15th
Arrive at Holiday Valley

Tuesday, July 18th, 8am to 5pm
Newborn Screening for Leukodystrophies

Wednesday, July 19th, 8am to 4pm
Leukodystrophy Treatments and Clinical Trials
Leukodystrophy Clinical Care
Leukodystrophy Care Network (LCN)

Accommodations, Meals, Transportation

Meals, accommodations and ground transportation (upon request) will be provided for all Presenters and the LCN Certified Center Directors and Care Coordinators. All other participants may attend in person at their own expense or attend virtually.

For participants attending in person, a $150 registration fee will help cover your meals and refreshments (on 7/16 and 7/17 while at the resort) and shuttle service* (upon request). All other forms of ground transportation (Uber, taxis, etc.) are at your own expense.

The following will have links with information soon:

  • Program
  • In Person Registration
  • Virtual Registration
  • Important Reminders
  • Travel Information
  • Travel Assistance (For Presenters, LCN Directors and Care Coordinators only)