Thank you to all who attended and supported this year’s Symposium. It was the best ever!

Click here to view highlights from the 2023 Family Symposium.

Click here to view this year’s Family Presentations.

July 19-23, 2023

The Hunter’s Hope Family Symposium is a time for Leukodystrophy families to gather for love, learning, sharing, and Hope. 

In-Person Symposium

Holiday Valley Resort
6557 Holiday Valley Rd
Ellicottville, NY 14731

Registration Process

  1. Registration – Closed
  2. Family Registration Payment (Deadline is June 15th)
  3. Registered Families T-shirts (Deadline is June 15th)
  4. Family Directory
    • Please email a high-quality family photo and story to Melissa at
  5. Kid Kamp Registration (Deadline is June 15th)
  6. Travel Information – (Deadline to submit is June 15th)

Family Walk Fundraiser – (Open to everyone!) Help us continue to provide the Symposium for our families. Create your fundraiser HERE

Frequently Asked Questions (FAQs)

Weekly Email Updates

July 7th
June 30th
June 23rd
June 16th
June 9th
June 2nd
May 26th
May 19th

Virtual Symposium

UPDATE: Due to technical issues, we are unable to stream the family portion of the Symposium. Sessions are being recorded and will be posted online as soon as possible. Thank you for understanding!

Thank you to our Sponsors!