Program

The Program is subject to change up until the Symposium begins.

 

StartFinishTopic/EventSpeakerLocation
Wednesday
July 15th
All DayHoliday Valley Resort CheckinPick up your Welcome Gifts in the Lobby.Lobby
6:00 PMFamily Welcome DinnerSunrise, 1st Fl HV Lodge
Every DayAll Day
Every DayAll DayPrayer RoomEveryone Welcome!Birdie, 2nd Fl HV Lodge
Every DayAll DaySymposium CentralYour Go-To PlaceSunrise, 1st Fl HV Lodge
Every DayAll DayPhotography Studio - Brody WheelerSign up at MoonshadowMoonshadow, 1st Fl HV Lodge
Every DayAll DayMorgan's Multi-Sensory WonderlandThe Sensory Sisters - Kristen Malfara, Deborah Hecker, Jennifer FitzgeraldExplorer, 1st Fl HV Lodge
Every DayAll DaySibling CentralAbner FamilyIndoor - Bunker, 2nd Fl HV Lodge
Outdoor - Resort Services Plaza Deck
Thursday
July 16th
8:00 AM9:30 AMBreakfastSunrise, 1st Fl HV Lodge
8:45 AMKid Kamp OpensSign in at CreeksideCreekside
9:00 AM9:45 AMPrayer PartyDrake & Christina LevasheffBirdie, 2nd Fl HV Lodge
AM Session ModeratorMichelle Leeker
10:00 AM10:10 AMWelcome and LCN OverviewAnna GranthamFairway, 2nd Fl HV Lodge
10:10 AM10:50 AMUpdates in Krabbe Disease and Medical Symposium OverviewDr. Joanne KurtzbergFairway, 2nd Fl HV Lodge
10:50 AM11:10 AMUpdates in NBS for MLDDr. Michael GelbFairway, 2nd Fl HV Lodge
11:10 AM11:20 AMBREAKFairway, 2nd Fl HV Lodge
11:20 AM11:55AMAdvocating for Expanded NBSZac and Michelle LeekerFairway, 2nd Fl HV Lodge
12:00 PMKid Kamp Closes for lunchParents pick up kidsCreekside
12:00 PM1:15 PMLunchSunrise, 1st Floor HV Lodge
1:00 PMKid Kamp OpensSign in at CreeksideCreekside
1:00 PM3:00 PMSibling ChallengeFor Siblings (12 yrs +)HV Clocktower
PM Session Moderators
1:30 PM2:00 PMAdvocacy Updates from FamiliesMike and Kelly Bonacorsa, Chris and Kristal Abner, Elisa Seeger, Kaprice ShullanbergerFairway, 2nd Fl HV Lodge
2:00PM2:30 PMMorgan's Multi-Sensory Wonderland
The Sensory Sisters - Kristen Malfara,
Jennifer Fitzgerald, Deborah Hecker
Fairway, 2nd Fl HV Lodge
2:30 PM3:00 PMLCN Family SurveyAnna Grantham
Fairway, 2nd Fl HV Lodge
3:00 PM3:45 PMQ&AAnna GranthamFairway, 2nd Fl HV Lodge
4:00 PMKid Kamp ClosesParents pick up kidsCreekside
Please note -- the group photo is postponed to Friday before the walk.
5:45 PMDinnerSunrise, 1st Floor HV Lodge
6:00 PMRaffleSunrise, 1st Floor HV Lodge
6:45 PM Family and Sibling Fashion ShowFamilies and Siblings, please wear your Collection Shirts and be prepared to tell your story and what your design represents.Sunrise, 1st Floor HV Lodge
Friday
July 18th
8:00 AM9:30 AMBreakfastSunrise, 1st Floor HV Lodge
8:45 AMKid Kamp OpensSign in at CreeksideCreekside
9:00 AM9:45 AMPrayer PartyDrake & Christina LevasheffBirdie, 2nd Fl HV Lodge
AM Session Moderator
9:45 AM10:30 AMThe Blessing of Our Stories: Families Sharing from the HeartFamiliesFairway, 2nd Fl HV Lodge
10:30 AM11:15 AMFavorite ThingsFamiliesFairway, 2nd Fl HV Lodge
11:15 AM11:45 AMPodcast, Beau's Blessings, and MoreJill KellyFairway, 2nd Fl HV Lodge
11:45 AMKid Kamp Closes for lunchParents pick up kidsCreekside
12:00 PM1:30LunchSunrise, 1st Fl HV Lodge
1:15 PMKid Kamp OpensSign in at CreeksideCreekside
1:30 PM4:00Breakout Sessions
Men's SessionModerated by Mel SerenoMoonshadow, 1st Fl HV Lodge
Women's SessionModerated by Christina LevasheffBirdie, 2nd Fl HV Lodge
Sibling's Session (12 years and up)Moderated by Wyatt AbnerBunker, 2nd Fl HV Lodge
4:00 PMKid Kamp ClosesParents pick up kidsCreekside
4:00 PM5:00 PMSibling ChallengeGamesHV Clocktower
5:00 PMGroup Photo, Balloon Release & Family Symposium Walk - Please wear your symposium shirtsKelly Family will lead Balloon Release prayer and the WalkFairway, 2nd Fl HV Lodge
6:00 PMDinnerSunrise, 1st Fl HV Lodge
6:00 PMRaffleSunrise, 1st Fl HV Lodge
7:30 PMSibling WorshipEli and Abby SmithSunrise, 1st Fl HV Lodge
Saturday, July 19th
8:00 AM9:30 AMBreakfastSunrise, 1st Fl HV Lodge
9:00 AM12:30 PMSky High Adventure ParkSiblings - Age 12 and up - Please see Chris and Kristal Abner with questions and if your child would like to attendAdventure Park
10:00 AM5:00 PMAll Day - Free TimeHoliday Valley Resort Lobby
Lunch on Your OwnWherever you like!
3:00 PM5:00 PMSibling Challenge| ChampionshipAll are welcome to watch!HV Clocktower
5:00 PMDinnerSunrise, 1st Fl HV Lodge
6:00 PMRaffleSunrise, 1st Fl HV Lodge
6:30 PMTalent ShowEveryone!Sunrise, 1st Fl HV Lodge
Sunday, July 20th
7:00 AM10:00 AMBreakfast to goSnowridge, Tamarack