Take Action for Newborn Screening
Hunter’s Hope advocates for newborn screening (NBS) for all possible disorders at birth, including Krabbe, ALD and similar disorders.
For diseases like Krabbe, ALD, and MLD they must be diagnosed early to save children’s lives. Therefore, it is critical all infants are screened for these diseases at birth.
To find out what conditions your state screens for, visit Baby’s First Test.
Take Action!
Help us advocate for Expanded Newborn Screening in Every State. Send a letter to your legislator in support of newborn screening for diseases like Krabbe, ALD, and MLD – click here.
We’re here to help… Please contact us if you would like to advocate for newborn screening in your state.
Newborn Screening for Krabbe - Ezra's Story
Ezra was born in Missouri. Because of newborn screening, he was diagnosed with Krabbe in his first weeks of life and underwent treatment for the disease at Duke Children’s Hospital. Newborn screening gave him the chance to benefit from the only available treatment for Krabbe, cord-blood transplant, which halts the progression of the disease.
Learn more about Ezra's story here.