July 16-20, 2025

The Hunter’s Hope Family Symposium is a time for Leukodystrophy families to gather for love, learning, sharing, and Hope. 


Theme

This year’s theme is Blessed!

We chose “Blessed” as our theme this year because it reminds the Kelly Family of the wonderful prayer below that Jill prayed every day for her children (Erin, Hunter, and Camryn). We hope that you are blessed through our Symposium. We have prayed this prayer for you too.

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Families Helping Families

It’s families helping families—turning hardship into hope!
Invite your family and friends to support your family fundraiser. Share our hope!

Click here to learn more

Holiday Valley Resort

The Symposium will be held at the beautiful Holiday Valley Resort.

Holiday Valley Resort
6557 Holiday Valley Rd
Ellicottville, NY 14731

Click here to learn more about Holiday Valley Resort
registration

Family Registration

Registration is Closed!

Click here for Family Symposium Attendance Policy.

Pay Registration Fee here.

* Your registration will not be finalized until you have paid your Adult Registration Fees ($100/Adult).

Shuttle Service

If you will need Shuttle Service to/from the Buffalo Airport, please click on the link below and fill out the form.

Deadline for Shuttle Service is June 15th.

Click here to request Shuttle Service

Symposium Central

Welcome to the heart of the symposium! Here you’ll find all the resources you need—sign-up sheets, free books, event information, snacks, and more.

Symposium Central is located to the right in the Dinning Room – Sunrise 1st Floor Holiday Valley Lodge.

Family Program

Please click on the link below to see a DRAFT of this year’s Program. This will change as we confirm our speakers.

Click here to learn more

Family Directory

Meet our 2025 Family Symposium Families!

Click here to see this year's Family Directory

Speaker Directory

We’re honored to welcome an exceptional group of medical professionals to this year’s symposium. These experts bring a wealth of knowledge, experience, and compassion to the conversation, offering valuable insights into the latest advancements and best practices in their fields. Their presentations will empower, educate, and inspire—all in support of better health and well-being for the communities we serve.

Click here to see the Speaker Directory

Kid Kamp

Kid Kamp Fun Awaits Your Little Ones!

Get ready for some awesome fun at Kid Kamp! Our Kid Kamp sessions are packed with exciting activities every Thursday and Friday morning and afternoon. You will need to sign your child in and out for each session.

Be sure to check the Program Schedule for drop-off, pick-up times, and any updates to the schedule.

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The Sibling Challenge: Let the Games Begin!

Get ready for some friendly competition at the Sibling Challenge! Older siblings will team up and face off in a series of exciting games, testing their skills, speed, and teamwork. It’s all about having fun, bonding, and celebrating the strength of siblings as they challenge each other in an epic showdown! Don’t miss out on the action and the chance to see who will come out on top! And, there are great prizes for the winners!

Click here to sign up for the Sibling Challenge!

Sky High Adventure Park

Ready to Rise Above It All?

Get ready for a treetop adventure like no other! Perched high in the canopy, you’ll cross swinging logs, dangle through wooden obstacles, and conquer each challenge using balance and brainpower—not just muscle.
Perfect for thrill-seekers who love a good test of agility and courage, this aerial course blends the beauty of the great outdoors with the excitement of sky-high fun. Leap from platform to platform and feel the rush of mastering the course!

Happening Saturday morning – check the Program for exact time and pick-up location.

Participants must be at least 12 years old. A parent-signed Assumption of Risk form is required and must be turned in when you arrive at the Park.

Click here to sign up for the Sky High Adventure Park!

Click here to learn more

Sibling Collection Fashion Show

The LCN Sibling Collection is a fun, meaningful line of products made just for the siblings of those affected by Leukodystrophy. Each item in the collection features a unique logo created by the siblings themselves, representing their journey, strength, and unity.

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Click here to learn about the Sibling Collection Challenge

Talent Show - Saturday Night!

Our final night together at the Symposium ends on a high note with the Talent Show—a beloved tradition that feels more like a big family reunion than a performance. Whether you sing, dance, tell jokes, do magic, or have another hidden talent, the stage is yours! No pressure, just a room full of cheers and support from people who can’t wait to celebrate you. All ages and talents welcome—so bring your courage, your creativity, and let’s make it a night to remember!

Sign up at Symposium Central.

Balloon Release & Walk

Wear your LCN Family Collection or LCN Sibling Collection t-shirts!!!

Join us Friday night (Check the Program for time) for a beautiful and uplifting moment as we honor the children affected by leukodystrophy with a Balloon Release! Each balloon will carry the name of a special child—many of whom are now in heaven—sending our love and messages up into the sky. It’s a powerful way to remember them and celebrate their spirit.

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Symposium Raffle – Join the Fun & Support the Symposium

We’re excited to bring back our Symposium Raffle—a fun way to win great prizes and help support the event we all love!
Every family will receive 12 raffle tickets in their Welcome Bag, and more tickets will be available for purchase throughout the week. We’ll have awesome items from Hunter’s Hope and Jim & Jill Kelly!
We’d love for YOU to be part of it!
If you’re able, please consider bringing an item to donate to the raffle—big or small, heartfelt or handmade, every gift helps make the raffle more fun and meaningful.
All proceeds go directly to help cover Symposium costs, so every ticket and every item makes a difference.

Let’s make this year’s raffle the best yet—thank you for being part of it!

Prayer Room

The Prayer Room is located in Birdie, 2nd Fl Holiday Valley Lodge.

We’ve set aside a quiet space for prayer and reflection during the symposium. If you wish, someone will be available to pray with you. You’ll also find inspiring books to browse and soft, uplifting music to help create a peaceful atmosphere.

Sensory Room

The Sensory Room is located in the Explorer, 1st Fl Holiday Valley Lodge.

We’re thrilled to offer a Sensory Room designed just for kids affected by leukodystrophy! This calming, engaging space will be open throughout the entire symposium, providing a peaceful environment where children can unwind, explore, and feel at ease.

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Group Photos

Time for the Group Photo!

One of our favorite Symposium traditions is the big group photo—and we don’t want you to miss it!
Join us Thursday at 5:00 PM in front of the Big Clock for a photo with all of our amazing families and a special photo of just the kids
Be sure to wear your “Blessed” Symposium t-shirt so we can show off our unity, love, and color-coordinated style!
Let’s make this memory one to frame!

Thank You to Our Supporters!

You can support our Symposium by donating here.

Sponsorship opportunities are described here.

Click here learn more