
July 16-20, 2025
The Hunter’s Hope Family Symposium is a time for Leukodystrophy families to gather for love, learning, sharing, and Hope.

Theme
This year’s theme is Blessed!
We chose “Blessed” as our theme this year because it reminds the Kelly Family of the wonderful prayer below that Jill prayed every day for her children (Erin, Hunter, and Camryn). We hope that you are blessed through our Symposium. We have prayed this prayer for you too.
“May the Lord bless and keep you. May He make his face shine down upon you and bring you peace. May you know the love God has for you. May you know that perfect love casts out all fear. May the Lord bless you with the spirit of wisdom and revelation so you can know Him better. May you be pure in heart, mind, and body. May you be strong and courageous. May you know how much Jesus loves you and how much we love you too!” ~Jill Kelly
“The Lord bless you and keep you; the Lord make his face shine on you and be gracious to you; the Lord turn his face toward you and give you peace.”’ Numbers 6:24-26
Families Helping Families
It’s families helping families—turning hardship into hope!
Invite your family and friends to support your family fundraiser. Share our hope!
Holiday Valley Resort
The Symposium will be held at the beautiful Holiday Valley Resort.
Holiday Valley Resort
6557 Holiday Valley Rd
Ellicottville, NY 14731

Family Registration
Registration is Closed!
Click here for Family Symposium Attendance Policy.
* Your registration will not be finalized until you have paid your Adult Registration Fees ($100/Adult).
Shuttle Service
If you will need Shuttle Service to/from the Buffalo Airport, please click on the link below and fill out the form.
Deadline for Shuttle Service is June 15th.
Click here to request Shuttle Service
Symposium Central
Welcome to the heart of the symposium! Here you’ll find all the resources you need—sign-up sheets, free books, event information, snacks, and more.
Symposium Central is located to the right in the Dinning Room – Sunrise 1st Floor Holiday Valley Lodge.
Family Program
Please click on the link below to see a DRAFT of this year’s Program. This will change as we confirm our speakers.
Click here to learn moreFamily Directory
Meet our 2025 Family Symposium Families!
Click here to see this year's Family DirectorySpeaker Directory
We’re honored to welcome an exceptional group of medical professionals to this year’s symposium. These experts bring a wealth of knowledge, experience, and compassion to the conversation, offering valuable insights into the latest advancements and best practices in their fields. Their presentations will empower, educate, and inspire—all in support of better health and well-being for the communities we serve.
Click here to see the Speaker Directory
Kid Kamp
Kid Kamp Fun Awaits Your Little Ones!
Get ready for some awesome fun at Kid Kamp! Our Kid Kamp sessions are packed with exciting activities every Thursday and Friday morning and afternoon. You will need to sign your child in and out for each session.
Be sure to check the Program Schedule for drop-off, pick-up times, and any updates to the schedule.
A quick heads-up: Our incredible Kid Kamp staff are amazing volunteers who are here to make your child’s experience super fun, but they’re not trained for complex medical care. So, if your child is 4 years old or younger or needs one-on-one care, we ask that a parent or caregiver stay with them to keep them safe and sound.
If your child needs assistance during the day, we’ll text you right away, so keep your phone nearby.
Let us know if there are any special considerations for your child when you register for Kid Kamp, so we can make sure everyone has a blast!

The Sibling Challenge: Let the Games Begin!
Get ready for some friendly competition at the Sibling Challenge! Older siblings will team up and face off in a series of exciting games, testing their skills, speed, and teamwork. It’s all about having fun, bonding, and celebrating the strength of siblings as they challenge each other in an epic showdown! Don’t miss out on the action and the chance to see who will come out on top! And, there are great prizes for the winners!
Sky High Adventure Park
Ready to Rise Above It All?
Get ready for a treetop adventure like no other! Perched high in the canopy, you’ll cross swinging logs, dangle through wooden obstacles, and conquer each challenge using balance and brainpower—not just muscle.
Perfect for thrill-seekers who love a good test of agility and courage, this aerial course blends the beauty of the great outdoors with the excitement of sky-high fun. Leap from platform to platform and feel the rush of mastering the course!
Happening Saturday morning – check the Program for exact time and pick-up location.
Participants must be at least 12 years old. A parent-signed Assumption of Risk form is required and must be turned in when you arrive at the Park.
Click here to sign up for the Sky High Adventure Park!
Click here to learn moreSibling Collection Fashion Show
The LCN Sibling Collection is a fun, meaningful line of products made just for the siblings of those affected by Leukodystrophy. Each item in the collection features a unique logo created by the siblings themselves, representing their journey, strength, and unity.
But that’s not all! The siblings will be the stars of a special fashion show at the symposium, where they’ll model their own designs and showcase their personalized apparel. It’s a celebration of their creativity and strength!
This collection is more than just cool gear—it’s a way to raise awareness, show support, and connect siblings going through similar experiences. Every purchase helps fund important research and support for the Leukodystrophy community.
Wear your strength, share your story, and be part of the movement!

Talent Show - Saturday Night!
Our final night together at the Symposium ends on a high note with the Talent Show—a beloved tradition that feels more like a big family reunion than a performance. Whether you sing, dance, tell jokes, do magic, or have another hidden talent, the stage is yours! No pressure, just a room full of cheers and support from people who can’t wait to celebrate you. All ages and talents welcome—so bring your courage, your creativity, and let’s make it a night to remember!
Sign up at Symposium Central.

Balloon Release & Walk
Wear your LCN Family Collection or LCN Sibling Collection t-shirts!!!
Join us Friday night (Check the Program for time) for a beautiful and uplifting moment as we honor the children affected by leukodystrophy with a Balloon Release! Each balloon will carry the name of a special child—many of whom are now in heaven—sending our love and messages up into the sky. It’s a powerful way to remember them and celebrate their spirit.
After the release, we’ll take a walk down the hill, surrounded by inspirational messages and amazing artwork created by the kids in Kid Kamp! It’s a chance to reflect, feel the love, and see the creativity and hope that shines through from all the children.
Come be a part of this touching and fun event—it’s a celebration of life, love, and strength!

Symposium Raffle – Join the Fun & Support the Symposium
We’re excited to bring back our Symposium Raffle—a fun way to win great prizes and help support the event we all love!
Every family will receive 12 raffle tickets in their Welcome Bag, and more tickets will be available for purchase throughout the week. We’ll have awesome items from Hunter’s Hope and Jim & Jill Kelly!
We’d love for YOU to be part of it!
If you’re able, please consider bringing an item to donate to the raffle—big or small, heartfelt or handmade, every gift helps make the raffle more fun and meaningful.
All proceeds go directly to help cover Symposium costs, so every ticket and every item makes a difference.
Let’s make this year’s raffle the best yet—thank you for being part of it!

Prayer Room
The Prayer Room is located in Birdie, 2nd Fl Holiday Valley Lodge.
We’ve set aside a quiet space for prayer and reflection during the symposium. If you wish, someone will be available to pray with you. You’ll also find inspiring books to browse and soft, uplifting music to help create a peaceful atmosphere.

Sensory Room
The Sensory Room is located in the Explorer, 1st Fl Holiday Valley Lodge.
We’re thrilled to offer a Sensory Room designed just for kids affected by leukodystrophy! This calming, engaging space will be open throughout the entire symposium, providing a peaceful environment where children can unwind, explore, and feel at ease.
Kristen and her amazing team will be on hand to provide support and make sure every child’s experience is tailored to their needs. Whether your child wants to relax or engage in sensory activities, the Sensory Room is the perfect spot for them to recharge and have fun in a safe, comforting space.
Come check it out anytime during the symposium – we’re here to make sure everyone has an incredible experience!

Group Photos
Time for the Group Photo!
One of our favorite Symposium traditions is the big group photo—and we don’t want you to miss it!
Join us Thursday at 5:00 PM in front of the Big Clock for a photo with all of our amazing families and a special photo of just the kids
Be sure to wear your “Blessed” Symposium t-shirt so we can show off our unity, love, and color-coordinated style!
Let’s make this memory one to frame!
Thank You to Our Supporters!
You can support our Symposium by donating here.
Sponsorship opportunities are described here.
Click here learn more