July 15-19, 2026
July 15-19, 2026
Theme - Comfort
2 Corinthians 1:3-4
Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God. The Comfort Book is a tender collection of stories from mothers who have walked through the heartbreak of loving a child with a terminal illness, facing unimaginable sorrow, and learning to cling to God in the midst of it all. Filled with honest words, quiet faith, and the comfort of Scripture, this book offers hope to grieving hearts and a gentle reminder that even in the deepest pain, God draws near.
Featured Bear
Hi, I’m Beau Bear,
I’m here to bring you comfort and remind you that you’re never alone and God loves you. Whenever you hug me, may you feel a little extra strength and courage and a whole lot of hope and love.
With love,
Beau
Click here to learn more
Family Registration
Registration is Open!
Click here for Family Symposium Attendance Policy.
* Your registration will not be finalized until you have paid your Adult Registration Fees ($100/Unaffected Adult).
Click here to Register
Families Helping Families
It’s families helping families—turning hardship into hope!
Invite your family and friends to support your family fundraiser. Share our hope!
Holiday Valley Resort
The Symposium will be held at the beautiful Holiday Valley Resort.
Holiday Valley Resort
6557 Holiday Valley Rd
Ellicottville, NY 14731
Shuttle Service
Deadline for Shuttle Service is June 15th.
When it’s available, please find the shuttle schedule and additional information here.
Symposium Central
Welcome to the heart of the symposium! Here you’ll find all the resources you need—sign-up sheets, free books, event information, snacks, and more.
Symposium Central is located to the right in the Dinning Room – Sunrise 1st Floor Holiday Valley Lodge.
Family Program
The Family Program will be coming soon.
Family Directory
Our Family Directory will be available soon!
Click here to see the 2025 Family Directory
Speaker Directory
We’re honored to welcome an exceptional group of medical professionals to this year’s symposium. These experts bring a wealth of knowledge, experience, and compassion to the conversation, offering valuable insights into the latest advancements and best practices in their fields. Their presentations will empower, educate, and inspire—all in support of better health and well-being for the communities we serve.
Our Speaker Directory will be available soon.
Kid Kamp
Kid Kamp Fun Awaits Your Little Ones!
Get ready for some awesome fun at Kid Kamp! Our Kid Kamp sessions are packed with exciting activities every Thursday and Friday morning and afternoon. You will need to sign your child in and out for each session.
Be sure to check the Program Schedule (available soon) for drop-off, pick-up times, and any updates to the schedule.
A quick heads-up: Our incredible Kid Kamp staff are amazing volunteers who are here to make your child’s experience super fun, but they’re not trained for complex medical care. So, if your child is 4 years old or younger or needs one-on-one care, we ask that a parent or caregiver stay with them to keep them safe and sound.
If your child needs assistance during the day, we’ll text you right away, so keep your phone nearby.
Let us know if there are any special considerations for your child when you register for Kid Kamp, so we can make sure everyone has a blast!
The Sibling Challenge: Let the Games Begin!
Get ready for some friendly competition at the Sibling Challenge! Older siblings will team up and face off in a series of exciting games, testing their skills, speed, and teamwork. It’s all about having fun, bonding, and celebrating the strength of siblings as they challenge each other in an epic showdown! Don’t miss out on the action and the chance to see who will come out on top! And, there are great prizes for the winners!
You can sign up at Symposium Central.
Sky High Adventure Park
Ready to Rise Above It All?
Get ready for a treetop adventure like no other! Perched high in the canopy, you’ll cross swinging logs, dangle through wooden obstacles, and conquer each challenge using balance and brainpower—not just muscle.
Perfect for thrill-seekers who love a good test of agility and courage, this aerial course blends the beauty of the great outdoors with the excitement of sky-high fun. Leap from platform to platform and feel the rush of mastering the course!
Happening Saturday morning – check the Program for exact time and pick-up location.
Participants must be at least 12 years old. A parent-signed Assumption of Risk form is required and must be turned in when you arrive at the Park.
You can sign up at Symposium Central
Click here to learn more
Shop Collections Fashion Show
This year’s fashion show will once again honor the beautiful stories of our LCN families. We invite each participant to choose a special piece from one of their previously created collections in our shop and wear it with pride. As they model their design, they will have the opportunity to share the story behind it — a story of love, courage, hope, and the unique journey that makes each family so deeply special.
Click here for the LCN Family Collection and LCN Sibling Collection.
Click here to go to our Shop
Talent Show - Saturday Night!
Our final night together at the Symposium is always so much fun as we gather for the Talent Show — a favorite tradition filled with laughter, cheers, and encouragement. Whether you sing, dance, tell jokes, do magic, or share another talent, all ages are welcome for this joyful night of fun and unforgettable memories.
You can sign up at Symposium Central.
Balloon Release & Walk
Wear your LCN Family Collection or LCN Sibling Collection t-shirts!!!
Join us Friday night (see Program for time) for our special Balloon Release as we honor children affected by leukodystrophy and remember those now in heaven. Afterward, families will walk down the hill surrounded by inspiring messages and artwork created by the kids in Kid Kamp. It is a meaningful and beautiful time to reflect, remember, and celebrate life, love, and hope.
Symposium Raffle – Join the Fun & Support the Symposium
We’re excited to bring back our Symposium Raffle—a fun way to win great prizes and help support the event we all love!
Every family will receive 12 raffle tickets in their Welcome Bag, and more tickets will be available for purchase throughout the week. We’ll have awesome items from Hunter’s Hope and Jim & Jill Kelly!
We’d love for YOU to be part of it!
If you’re able, please consider bringing an item to donate to the raffle—big or small, heartfelt or handmade, every gift helps make the raffle more fun and meaningful.
All proceeds go directly to help cover Symposium costs, so every ticket and every item makes a difference.
Let’s make this year’s raffle the best yet—thank you for being part of it!
Prayer Room
The Prayer Room is located in Birdie, 2nd Fl Holiday Valley Lodge.
We’ve set aside a quiet space for prayer and reflection during the symposium. If you wish, someone will be available to pray with you. You’ll also find inspiring books to browse and soft, uplifting music to help create a peaceful atmosphere.
Sensory Room
The Sensory Room is located in the Explorer, 1st Fl Holiday Valley Lodge.
We’re thrilled to offer a Sensory Room designed just for kids affected by leukodystrophy! This calming, engaging space will be open throughout the entire symposium, providing a peaceful environment where children can unwind, explore, and feel at ease.
Kristen and her amazing team will be on hand to provide support and make sure every child’s experience is tailored to their needs. Whether your child wants to relax or engage in sensory activities, the Sensory Room is the perfect spot for them to recharge and have fun in a safe, comforting space.
Come check it out anytime during the symposium – we’re here to make sure everyone has an incredible experience!
