2026 Medical Symposium

Meeting Registration

Registration for the 2026 Medical Symposium is now open. Please register below and submit your registration fee to finalize your registration. If you plan to use the shuttle service to and from the Buffalo Airport, please also complete the Shuttle Reservation Form.

• • Registration Form
  • Pay Registration Fee
  • Shuttle Reservation Form

Meeting information and Important Links

• 2026 Medical Symposium Agenda
• 2026 Speaker Directory
• Shuttle Schedule – will be available the week of the meeting
• More Information

Agenda Overview

Monday, July 13th
Arrive at Holiday Valley

Tuesday, July 14th, 8am to 5pm
Newborn Screening for Leukodystrophies

Wednesday, July 15th, 7:30am to 4:30pm
Leukodystrophy Treatments and Clinical Trials
Leukodystrophy Clinical Care
Leukodystrophy Care Network (LCN)
Family Welcome Dinner — all Medical Symposium attendees are invited to attend

Accommodations, Meals, Transportation

Meals, accommodations and ground transportation (upon request) will be provided for all Presenters and the LCN Certified Center Directors and Care Coordinators. All other participants may attend in person at their own expense or attend virtually.

For participants attending in person, Hunter’s Hope will book your room based on the nights indicated on your registration form. Please let us know of any changes to your plans at least three weeks prior to the meeting, as Holiday Valley may charge guests for any last-minute changes.

A $150 registration fee helps cover meals and refreshments on July 14 and 15 while at the resort, as well as shuttle service upon completion of the shuttle reservation form. All other ground transportation (e.g., Uber, taxis) is at your own expense.

Thank You to our Sponsors!

You can support our Symposium by donating here.

Sponsorship opportunities are described here.

See our 2026 Sponsors here.