Globoid Cell Leukodystrophy (Krabbe Disease)
Stockholm, Sweden
Born: 10/21/12 Went to Heaven: 6/27/14
San Jacinto, CA
Born: 2/11/11 Went to Heaven: 12/10/11 Garrett’s Video
Barrington, RI
Alexander Disease
Dewitt, MI
Born: 10/10/08 Went to Heaven: 4/28/17
New Milford, PA
Born: 7/13/04 Went to Heaven: 9/4/24
Born: 3/18/02 Went to Heaven: 2/1/03
Hershey, PA
Born: 7/30/14 Went to Heaven: 3/27/16
Metachromatic Leukodystrophy (MLD)
Rossville, GA
Born: 8/2/05 Transplant
Fort Worth, TX
Born: 12/21/08 Went to Heaven: 11/4/16 Eden’s Caring Bridge
Leven, UK
Born: 11/16/13 Went to Heaven: 9/9/14