We are Phil and Amy May. We have been married 26 years and we have 4 children. Jackson is 21, Conner is 18, Dylan is in heaven (and would be 15 in earthly years) and Sophie is 12. We had 3 wonderful boys, as of October 4, 2004, when our world came crashing down. That… Read more »
When Morgan was 10 weeks old, he started to demonstrate symptoms of colic, and our doctor simply suggested different holistic remedies we could try to alleviate his discomfort. However, as time went on his pain got worse, his round-the-clock screaming episodes escalated, and he failed to meet his 4-month developmental milestones. Morgan was evaluated by… Read more »
Bethany, the seventh child of David and Lindey McIntyre, was born in London, Canada on April 1st, 1993. Bethany was born as normal as her brothers and sisters and her early life saw steady development, obtaining the usual milestones. Bethany’s only difficulty seemed to be her late progression in walking. She demonstrated a difficulty with… Read more »
The Wallace Family Jackson was a thriving baby boy for the first five months of his life. He was at the top of the charts in height and weight, hitting all of his developmental milestones on time or early, and was an all-around cheerful baby boy. At the five month mark we began to notice… Read more »
Dear Friends, Words cannot express the joy that our family has experienced, because of our precious son Hunter (02/14/97 – 08/08/05), and the many beautiful Leukodystrophy children and families we have been blessed to meet over the last 20 years. Little did Jim and I know, when we first heard the word Leukodystrophy, that our… Read more »
Mabry Kate and Owen, Krabbe Leukodystrophy – Duke University Hospital To tell the story of sweet Owen, we must first start with the story of his sister, Mabry Kate. Mabry Kate was born seemingly happy and healthy on March 13, 2014. She was cooing, smiling, and interacting like most babies do until she was almost… Read more »
Click Here to View our January 2018 Update
Dear Friend, It has been 20 years since we first heard the word Leukodystrophy (luke – o – dis – trophy). At first, that word meant one thing – a death sentence for our one and only son, Hunter (2/14/97 – 8/5/05). Over time and by God’s grace, the Lord has healed our hearts and… Read more »
Click Here to View our November 2017 Update
Click Here to View our September 2017 Update
