Posts Tagged: Leukodystrophy

The Malfara Family

When Morgan was 10 weeks old, he started to demonstrate symptoms of colic, and our doctor simply suggested different holistic remedies we could try to alleviate his discomfort. However, as time went on his pain got worse, his round-the-clock screaming episodes escalated, and he failed to meet his 4-month developmental milestones. Morgan was evaluated by… Read more »

Thank You, for 20 Years of Hope

Dear Friends, Words cannot express the joy that our family has experienced, because of our precious son Hunter (02/14/97 – 08/08/05), and the many beautiful Leukodystrophy children and families we have been blessed to meet over the last 20 years. Little did Jim and I know, when we first heard the word Leukodystrophy, that our… Read more »