Posts Categorized: Leukodystrophy Family Stories of Hope

The Malfara Family

When Morgan was 10 weeks old, he started to demonstrate symptoms of colic, and our doctor simply suggested different holistic remedies we could try to alleviate his discomfort. However, as time went on his pain got worse, his round-the-clock screaming episodes escalated, and he failed to meet his 4-month developmental milestones. Morgan was evaluated by… Read more »

The McIntyres

Bethany, the seventh child of David and Lindey McIntyre, was born in London, Canada on April 1st, 1993. Bethany was born as normal as her brothers and sisters and her early life saw steady development, obtaining the usual milestones. Bethany’s only difficulty seemed to be her late progression in walking. She demonstrated a difficulty with… Read more »

The Wallace Family

The Wallace Family Jackson was a thriving baby boy for the first five months of his life. He was at the top of the charts in height and weight, hitting all of his developmental milestones on time or early, and was an all-around cheerful baby boy. At the five month mark we began to notice… Read more »

The Webbs

Webb Family Hunters Hope

Mabry Kate and Owen, Krabbe Leukodystrophy – Duke University Hospital To tell the story of sweet Owen, we must first start with the story of his sister, Mabry Kate. Mabry Kate was born seemingly happy and healthy on March 13, 2014. She was cooing, smiling, and interacting like most babies do until she was almost… Read more »