Globoid Cell Leukodystrophy (Krabbe Disease)
Dubai
Born: 11/8/95 Went to Heaven: 2/9/07
Lancashire, United Kingdom
Born: 8/28/09 Went to Heaven: 1/1/11 Frankie’s Caring Bridge Site
Farmington, NH
Born: 9/21/99 Went to Heaven: 1/18/03
Born: 11/9/03 Transplant
Born: 6/25/01 Transplant
Vanishing White Matter Disease (Childhood ataxia with diffuse central nervous system hypomyelination, or CACH)
Belton, MO
Born: 12/29/06 Went to Heaven: 4/26/12
Born: 3/9/96 Went to Heaven: 9/16/01
Fountain, CO
Born: 11/24/01 Went to Heaven: 9/22/02
Alexander Disease
Salem, OH
Born: 11/20/96 Went to Heaven: 4/30/04
Fort Wayne, IN
Born: 12/20/96 Went to Heaven: 4/22/98