Wall of Fame

WOF-Phoebe

Knibbs-Skiddy Family

Phoebe Knibbs

Globoid Cell Leukodystrophy
(Krabbe Disease)

Suffolk, United Kingdom

Born: 5/29/11
Went to Heaven: 2/23/13

WOF-Jodie

Koester Family

Jodie Koester

Globoid Cell Leukodystrophy
(Krabbe Disease)

Waterman, IL

Born: 4/18/76
Went to Heaven: 3/27/80

WOF-Nicole

Kogut Family

Nicole Caitlin Kogut

Globoid Cell Leukodystrophy
(Krabbe Disease)

Elba, NY

Born: 6/25/94
Went to Heaven: 8/16/95

WOF-Alyssa K.

Kristoff Family Child 2

Alyssa Kristoff

Globoid Cell Leukodystrophy
(Krabbe Disease)

Colchester, CT

Born: 7/20/04
Went to Heaven: 11/25/10

Kristoff Family Child 1

Ryan Kristoff

Globoid Cell Leukodystrophy
(Krabbe Disease)

Colchester, CT

Born: 3/7/01
Went to Heaven: 12/22/17

WOF-Lexie

Kruger Family

Lexie Kruger

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cape Town, South Africa

Born: 6/9/13
Went to Heaven: 3/20/14
Lexie’s Blogspot

Krupa Family

Steven Adam Krupa

Globoid Cell Leukodystrophy
(Krabbe Disease)

Sarasota, FL

Born: 9/30/94
Went to Heaven: 12/30/95

Lairson Family

Samantha Marie Lairson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Springboro, OH

Born: 8/3/95
Went to Heaven: 7/16/96

WOF-Hunter L.

Lafe Family

Hunter Lafe

Unspecified Leukodystrophy

Claysville, PA

Born: 3/30/13
Went to Heaven: 1/31/14

WOF-Madison L.

Layton Family

Madison Layton

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jackson Center, OH

Born: 7/11/12
Went to Heaven: 6/22/2014