Steering Committee
The LCN Steering Committee is comprised of family members affected by leukodystrophy who provide leadership, direction, and oversight for the network.
A core value of the LCN is ensuring that families have a voice and a seat at the table alongside medical providers. Through the Steering Committee’s guidance, we uphold our commitment to patient-centered care in everything we do.
Click on the Steering Committee members’ names to read their stories: Chris and Kristal Abner, Ron Chapleau, Dianna Greene, Matt & Lauren Hammond, Kristen Malfara, Phil & Amy May, Elisa Seeger, Kaprice Shullanberger, and Christin Webb.
Hunter’s Hope Support Team
Jacque Waggoner, CEO, LCN Executive Director
Anna Grantham, LCN Director