The Hunter’s Hope Medical Symposium is a time for Leukodystrophy medical providers, newborn screening lab personnel, industry partners, researchers, and families from around the world to gather for learning, sharing, and Hope.
In Person & Virtual
July 13 – 15th
Holiday Valley Resort
Ellicottville, NY
Meeting Registration
Please register for the 2026 Medical Symposium below. To finalize your registration, please make sure to pay your registration fees. Don’t forget to complete the Shuttle Reservation Form if you would like to use our shuttle service to/from the Buffalo Airport!
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- Registration will open soon
Meeting information and Important Links
- 2026 Medical Symposium Agenda
- 2026 Speaker Directory
- Shuttle Schedule
- More Information
Agenda Overview
Monday, July 13th
Arrive at Holiday Valley
Tuesday, July 14th, 8am to 5pm
Newborn Screening for Leukodystrophies
Wednesday, July 15th, 7:30am to 4:30pm
Leukodystrophy Treatments and Clinical Trials
Leukodystrophy Clinical Care
Leukodystrophy Care Network (LCN)
Family Welcome Dinner — all Medical Symposium attendees are invited to attend
Accommodations, Meals, Transportation
Meals, accommodations and ground transportation (upon request) will be provided for all Presenters and the LCN Certified Center Directors and Care Coordinators. All other participants may attend in person at their own expense or attend virtually.
For participants attending in person, a $150 registration fee will help cover your meals and refreshments (on 7/14 and 7/15 while at the resort) and shuttle service* (upon completion of shuttle form). All other forms of ground transportation (Uber, taxis, etc.) are at your own expense.
Thank You to our Sponsors!
Learn more about our generous supporters here.