Newborn Screening for Krabbe
Blackwell Family Pic
Blackwell Family Pic
Blackwell Family
Blackwell Family
Blackwell Family Photo
Blackwell Family Photo
Karlita Blackwell Headshot
Karlita Blackwell Headshot
2019 Blackwell
2019 Blackwell
NBS Ezra Blackwell
NBS Ezra Blackwell
Ezra
Ezra
Ezra infant photo
Ezra infant photo
Ezra laughing 2022
Ezra laughing 2022
Ezra sitting
Ezra sitting
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Ryan, Karlita and Ezra


Podcast Episode Show Notes


But If Not, He Is Still Good

“Nothing else that we cling to will sustain us. So just clinging to the fact that no matter what happens, He is still good. I think that is kind of how we try to live our lives, no matter the hardship, we know, and we trust. And ultimately, in heaven, none of this will matter anyway. So just remember. Remembering, ultimately, that God is still faithful, and He is still good. And we can’t cling to the things of this world, but we can cling to Him and His Word and His truth.”

“If God is good, then why…” Fill in the blank. I think each person has their own “why” behind their doubt in whether or not God is good. However, our whys don’t change the truth – Goodness is who God is.

In Karlita’s episode you will hear the story of a woman who put all her hope in God’s goodness. She witnessed Him work in the darkest valleys and deepest heartaches. In the midst of the unimaginable pain of having her son, Ezra, diagnosed with a fatal disease, she clung to the only thing that would sustain her – her faith in a Good God.


Featuring

Karlita Blackwell


Karlita Blackwell resides in Missouri with her husband, Ryan, and five year old son, Ezra. Ezra was diagnosed with Krabbe via newborn screening and was transplanted at Duke University when he was a month old.

Because of this gift, he is about to start kindergarten and spreads joy wherever he goes with his infectious personality. He loves the beach, riding horses and telling jokes. Although her primary commitment is being Ezra’s caretaker, Karlita has worked in the social work field for the past nine years and has a Master’s degree in counseling. She is a passionate advocate for newborn screening and spreading awareness about Krabbe Disease.

 

Comfort

Karlita providing comfort for families in the Hunter’s Hope Comfort Booklet.  You can read her message here.


Social Media

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About the Disease

Krabbe is one of many diseases in a disease family called Leukodystrophies. Learn more about Leukodystrophies here.

Learn more about Krabbe Disease here.


About Newborn Screening

Learn more about how early detection through Newborn Screening saves lives.

Learn more about Karlita’s advocating for Krabbe Newborn Screening at the ACHDNC meeting. Read her comments here.