Wall of Fame
Arizmendi Family
Evelyn Arizmendi
Globoid Cell Leukodystrophy
(Krabbe Disease)
Hebron, IN
Born: 9/6/14
Went to Heaven: 4/16/18
Armstrong Family
Matthew Armstrong
Vanishing White Matter Disease
(Childhood ataxia with diffuse central nervous system hypomyelination, or CACH)
Allen Park, MI
Born: 1/26/05
Went to Heaven: 7/7/18
Lindsey-Minnick Family
Dalton Minnick
Adrenoleukodystrophy
(ALD)
Evansville, IN
Born: 12/1/05
Went to Heaven: 12/13/16
Forman-Shifferly Family
Stephen Shifferly
Unspecified Leukodystrophy
Victoria, TX
Born: 5/28/09
Went to Heaven: 12/1/13
Atwi Family Child 2
Adam Atwi
Vanishing White Matter Disease
(Childhood ataxia with diffuse central nervous system hypomyelination or CACH)
Halifax, NS Canada
Born: 10/31/15
Atwi Family Child 1
Leya Atwi
Vanishing White Matter Disease
(Childhood ataxia with diffuse central nervous system hypomyelination or CACH)
Halifax, NS Canada
Born: 5/4/10
Went to Heaven: 3/23/11
Butler Family
Trey Butler
Metachromatic Leukodystrophy
(MLD)
Victor, NY
Born: 9/21/96
Went to Heaven: 3/12/16
Glass-Witgen Family
Averie Glass-Witgen
Pelizaeus-Merzbacher-like Disease
(PMLD)
Webberville, MI
Born: 10/26/08
Hoffman Family
Ruby Hoffman
Hypomyelination with Atrophy of Basal Ganglia and Cerebellum (H-ABC)
York, PA
Born: 12/19/14
Anguiano Family
Daniel Anguiano
Globoid Cell Leukodystrophy
(Krabbe Disease)
Dallas, TX
Born: 12/6/82
Went to Heaven: 3/6/87