Wall of Fame
Kennedy Family
Oliver Kennedy
Metachromatic Leukodystrophy (MLD)
Alberta, Canada
Born: 12/16/11
Went to Heaven: 9/10/17
Crowell Family
Connor Crowell
Globoid Cell Leukodystrophy
(Krabbe Family)
Phoenix, AZ
Born: 3/16/16
Went to Heaven: 3/25/17
Chynn Family Child 2
Freya Chynn
Globoid Cell Leukodystrophy
(Krabbe Disease)
Newfoundland, Canada
Born: 2/14/16
Went to Heaven: 6/11/18
Chynn Family Child 1
Autumn Chynn
Globoid Cell Leukodystrophy
(Krabbe Disease)
Newfoundland, Canada
Born: 2/14/16
Went to Heaven: 1/30/17
Morse Family
Grayson Morse
Globoid Cell Leukodystrophy
(Krabbe)
Boise, ID
Born: 10/30/15
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Ponce Family
Hayden Ponce
Globoid Cell Leukodsytrophy
(Krabbe)
Coal Valley, IL
Born: 1/26/17
Went to Heaven: 9/25/17
Wooton Family
Korbin Wootton
Aicardi-Goutieres Syndrome
(AGS)
St. Albans, VT
Born: 10/9/14
Shelton Family
Lana Shelton
Globoid Cell Leukodystrophy
(Krabbe Disease)
North Riverside, IL
Born: 7/4/16
Went to Heaven: 12/31/17
Keiser Family
Leaigha Rose-Ann Keiser
Unspecified Leukodystrophy
Quincy, MI
Born: 6/17/11
Went to Heaven: 11/2/15
Johnson Family
Macy Johnson
Globoid Cell Leukodystrophy
(Krabbe Disease)
Maryville, TN
Born: 3/14/17
Went to Heaven: 11/25/18