Stroup Family

Johanna “JoJo” Stroup

Metachromatic Leukodystrophy
(MLD)

Port Republic, MD

Born: 7/9/2009
Transplant

Nichols-Jenkins Family

Logan Nichols

Globoid Cell Leukodystrophy
(Krabbe)

Chicago, IL

Born: 3/10/15
Went to Heaven: 6/20/17

Shullanberger Family

Bryleigh Shullanberger

Metachromatic Leukodystrophy
(MLD)

New Braunfels, TX

Born: 11/1/2010
Went to Heaven: 10/20/21

Herring Family Child 2

Tyree Herring

Adrenoleukodystrophy
(ALD)

Ocala, FL

Born: 6/10/09

Mohr Family

Zander Mohr

Globoid Cell Leukodystrophy
(Krabbe Disease)

Erie, PA

Born: 6/20/14
Went to Heaven: 8/29/16

Patil Family

Devashree Patil

Globoid Cell Leukodystrophy
(Krabbe Disease)

Osmanabad, India

Born: 7/4/15
Went to Heaven: 8/7/16

Branch Family

William Branch

Globoid Cell Leukodystrophy
(Krabbe Disease)

Davenport, IA

Born: 6/8/14
Transplant

Sweet William’s Way Facebook

Wheeler Family

Makaeya Wheeler

Metachromatic Leukodystrophy
(MLD)

Easton, PA

Born: 8/30/07
Went to Heaven: 7/29/16

Barnett Family

Max Barnett

Globoid Cell Leukodystrophy
(Krabbe Disease)

Phoenix, AZ

Born: 2/6/14
Went to Heaven:  6/24/16

Rivera Family Child 1

Randy Rivera

Adrenoleukodystrophy
(ALD)

Paterson, NJ

Born: 12/4/96
Went to Heaven: 2/28/10