Keiser Family

Leaigha Rose-Ann Keiser

Unspecified Leukodystrophy

Quincy, MI

Born: 6/17/11
Went to Heaven: 11/2/15

Johnson Family

Macy Johnson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Maryville, TN

Born: 3/14/17
Went to Heaven: 11/25/18

Almassri Family

Rawand Almassri

18q Syndrome with deficiency of myelin basic protein

Gaza

Born: 9/4/16

Wilson Family

Anabelle Cora Wilson

Metachromatic Leukodystrophy
(MLD)

Bend, OR

Born: 12/11/10
Went to Heaven: 5/10/17

Rauner Family

Kevin Rauner

Adrenoleukodystrophy
(ALD)

Lincoln, NE

Born: 9/10/82
Went to Heaven: 10/8/03

Moody Family

Charles Moody

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mesa, AZ

Born: 2/27/15
Went to Heaven: 6/27/16

Miller Family

Jackson Miller

Pelizaeus Merzbacher Disease
(X-linked spastic paraplegia)

Smithburg, MD

Born: 10/28/12
Joy In Jack’s Journey Facebook

Main Family

Jase Main

Globoid Cell Leukodystrophy
(Krabbe Disease)

Edmore, MI

Born: 11/12/14
Went to Heaven: 12/20/17

Luczak Family

Marty Luczak

Adrenomyeloneuropathy
(AMN)

Lockport, NY

Born: 6/30/71
Went to Heaven: 1/13/22

Casey Family

Caroline “CC” Casey

Metachromatic Leukodystrophy
(MLD)

Charlotte, NC

Born: 5/1/13
Went to Heaven: 7/10/23
Caring For Caroline Facebook