Wall of Fame
Sheffer Family
Cruz Sheffer
Adrenoleukodystrophy
(ALD)
Endicott, NY
Born: 10/02/11
Finn Family
Conner Finn
Adrenoleukodystrophy
(ALD)
Saskatoon, Saskatchewan, Canada
Born: 03/29/16
Jones Family
Faith Ann Jones
Globoid Cell Leukodystrophy
(Krabbe Disease)
Ontario, Canada
Born: 10/14/09
Jones Family
Alicia Leigh Jones
Globoid Cell Leukodystrophy
(Krabbe Disease)
Ontario, Canada
Born: 08/30/04
Went to Heaven: 10/17/05
Van Houten Family
Ky’Zion Van Houten
Globoid Cell Leukodystrophy
(Krabbe Disease)
Willemstad, Curaçao
Born: 10/20/15
Whitman-Prince Family
Antonio Prince
Unspecified Leukodystrophy
Eagle Point, OR
Born: 05/20/08
Went to Heaven: 03/25/22
Dubon Family
Vladimir Dubon
Unspecified Leukodystrophy
Comayagua, Honduras
Born: 05/09/20
Rennie Family
Raife Rennie
Metachromatic Leukodystrophy
(MLD)
Seymour, TN
Born: 08/30/03
Went to Heaven: 10/10/22
Magnúsdóttir Family
Aron Elí Örvarsson
Globoid Cell Leukodystrophy
(Krabbe Disease)
Reykjavík, Iceland
Born: 11/06/18
Stewart Family
Eric Stewart
Cerebrotendinous Xanthomatosis (CTX)
Albany, OR
Born: 01/09/91